need your input. I have been on Sprycel now since 2010. (Gleevic before that). Anyway, I have dealt with all the other "normal" cycling stuff like cramps, muscle twitches, and the rest but I seem to have developed some stuff that is cycling only in intensity now, never quite going away.
I developed tremors (shakes) a long time ago, sometimes violent but mostly just like I just slammed several espressos in a row. Thing is they don't go away (aka cycle) anymore. I've had the sensory neuropathy for years and taking Neurontin (feet are also getting REALLY bad now too, connection?). My new PCP is thinking that what I was assuming was just motor neuropathy from the Sprycel, just might be something more ominous. Thing is even tho she has a good background in neurology, she is not that familiar with our drugs and all the crazy quirks we can have.
I've already had the MRI and the results were negative (yea) but it doesn't rule out other potential nasty things in her mind like Parkinson's.
Guess what I need to know is have any of you had tremors and/or balance issues after being on Sprycel for a while that does not just "cycle" but are an on-going problem???
Thanks in advance for everyone's help. We really are all in this journey together!!!!