Wow. Trey, just as I remember you, an amazing resource. You were there with a helping hand when I was first struggling with my journey and here you are again, Bless you!!!!
The links are fantastic and a real eye opener. So, if I do have Parkinson's (kind of looking that way) I am already on the best drug(s) to keep it slowed down! (ok, where's the thumbs up emoticon?) Already printed out the articles and plan to drop them off to my PCP when I go for the test tomorrow. My Onc isn't in on this.....yet. I have a great one but he's over 2 hours away so I'll probably be snail mailing him a copy too.
Hi Pat! (insert hand waving emoticon) Thank you for the good wishes and actually, everything considered, things really are very well with me I mean I am a 7+ yr CML survivor (aka LIVING) walking miracle after all! I hope the same is true with you!
Now, Trey has given me some great directions to go in for more research so looks like my fingers are going to have a very busy evening!
ETA; my dr's office just called. My insurance would not cover the CT scan (what was ordered) but they will approve an MRI so I'm rescheduled for Sept. 2nd. Now, my dr calls to explain what was going on and told me she would have liked to just do the MRI anyway, but thought the insurance wouldn't allow it so she opted for what she assumed would be the easier to get thru and then fight for the MRI later if the CTscan was negative. She couldn't believe that they told her "why don't you just do the MRI and be done with it?" Got to love UHC. They have been just super with all my "hiccups". When I was dxd with paracardial and peripheral effusions I got so many Echoes I was on a first name basis with the technicians and just had to wave at the front desk to check in but my insurance never balked once. Whew.
Also got the chance to tell my dr at least the high points of the articles and she was shocked and excited! Made me promise to get her copies. I might drop them off tomorrow along with whatever else I did up tonight.