Hi All -
I am a newly diagnosed Ph+ CML patient <6mos. Treatment therapy is Tasigna. I am a retired military so I have Tricare as my insurance.
Since before diagnosis neither my oncologist nor I have had any luck getting insurance approval for a PCR test. Tricare says the test is "experimental" and thus the denial. Appeals have been useless. My Congressman is looking into the situation but I do not hold out much hope of a resolution.
Has anyone else had this type of problem with their insurance? Recommendations or suggestions? If I understand correctly the cost of a PCR is about $1200-1500. I could afford to pay for maybe one but this would not be doable 3-4 times per year.
Novartis is currently offering free RQ-PCR tests but just not for patients with "government" provided insurance so I am out of luck there as well.
I know that BMB is an alternative that is covered by insurance but after my last experience I do not relish the thought of another anytime soon.
What is the Standard-of-Care for CML patients when it comes to monitoring?
Thank you for any help that might be provided!