Hi Everyone! I started Sprycel 2 weeks ago and after the first week of horrific headaches, I was feeling awesome. Then this past Sunday, I woke up with my equilibrium completely off in the morning. Realizing I had been at a get together and didn't eat a ton, after breakfast I started to feel much better. Then I started to have shortness of breath and when I would take a deep breath I would get a pain on the right side of my collarbone or neck. By the time nighttime hit, I had so much anxiety about it, my husband took me to the ER.
After a normal ekg(except for accelerated heart rate) they gave me a chest x-ray and a ct scan. All came back normal. My vitals were fine, oxygen level 99%. So, they sent me away and told me to follow up with my doctor. Already had an appointment with my onc for yesterday so went there, he looked at the x-ray and ct scan and said it all looked good. Listened to my lungs and said it again all looks good.
The shortness of breath happens by just walking just to the bus stop for my kids. I take a deep breath and feel tightness along my collarbone on both sides now. But if I'm sitting, my breathing is normal. Could this just be some form of inflammation? My onc is having me go in for an echocardiogram to get a baseline. I'm only 38 and do have high blood pressure, but I check it everyday and it's been more controlled now than before I started the meds. The light headiness seems to occur when I'm cold.
Am i being a hypochondriac? Has anyone else ever had these side effects before?