Posted 12 August 2014 - 02:06 AM
Great to meet you! Gerry tipped us off about your blog yesterday, so I had a read and commented on one of the blog posts. I've been feeling really down lately and have been in a bit of pain, so it was really helpful for me to read what you had to say yesterday. I especially liked the 'tablets' post. Some days can get pretty frustrating with all the things we have to deal with, but in the end there is not a lot we can do, and fighting it mostly makes me feel worse. So next time I feel down I will, like you, take my tablets and remind myself that even thought I hurt, they are saving my life.
I hope your hip is healing up well, that's a difficult thing to go through at such a young age, I'm sure you're sick of hearing people say that though.
Diagnosed 9 June 2011, Glivec 400mg June 2011-July 2017, Tasigna 600mg July 2017-present (switched due to intolerable side effects, and desire for future cessation attempt).
Commenced monthly testing when MR4.0 lost during 2012.
2017: <0.01, <0.01, 0.005 (200mg Glivec, Adelaide) <0.01, 0.001 (new test sensitivity)
2016: <0.01, <0.01, PCRU, 0.002 (Adelaide)
2015: <0.01, <0.01, <0.01, 0.013
2014: PCRU, <0.01, <0.01, <0.01, <0.01
2013: 0.01, 0.014, 0.016, 0.026, 0.041, <0.01, <0.01
2012: <0.01, <0.01, 0.013, 0.032, 0.021
2011: 38.00, 12.00, 0.14