The Hem/Onc I see sends the PCR bloodwork to NeoGenomics in Florida. I am wondering if anyone else has theirs sent to that same lab and if so have you noticed any issues with the results lately? I am trying to determine if my doc was just trying to make me feel better at my last appointment or if others truly are having the same experience as me.
Here's the situation. In Novemwber I switched to Sprycel after taking Gleevec for 3 1/2 years. While on Gleevec, the best response I ever got to was a 2 1/2 log reduction in PCR before it started climbing. After 5 months on Sprycel I hit MMR (actually an almost 4 log reduction) in March of this year. At the doctor the other week my results for June showed I lost MMR and in fact was at just over a 2 1/2 log reduction. I was pretty upset but the doc said he has had a number of his patients see unexpected results over the last 2 months or so. In every case the PCR number is higher than what should be expected. Like I said, I don't know if he said that just to make me feel better or if he does suspect there is a lab issue.