Member
Posted 31 May 2014 - 09:52 AM
Hi Everyone,
Just wanted to let ya'll know that my PCR is down from 0.125 to 0.06. FINALLY. I have waited so long to see if I would ever get to MMR and 3+ years later I have. I just wanted to post for anyone that responds slowly to the drugs so I can let them know that there is light at the end of the tunnel. This board seems to be devoid of long term slow responders or people that are in the "zone" between CCYR and MMR so I just felt like I should chime in. Happy weekend!! -Joshua
Advanced Member
Posted 31 May 2014 - 10:27 AM
Josh, I have followed your CML journey and I am so glad to hear your good news.
After 3 years you can relax now and I hope for you a MMR forever.
Take care.
Simone
Advanced Member
Posted 31 May 2014 - 01:47 PM
So, so happy for you Josh! Being a fellow slow responder, you are an inspiration! Thanks for the update and congratulations! Best to you, Melanie
Advanced Member
Posted 31 May 2014 - 05:27 PM
Fantastic news Joshua! I'm so happy to hear this 
Diagnosed 9 June 2011, Glivec 400mg June 2011-July 2017, Tasigna 600mg July 2017-present (switched due to intolerable side effects, and desire for future cessation attempt).
Commenced monthly testing when MR4.0 lost during 2012.
2017: <0.01, <0.01, 0.005 (200mg Glivec, Adelaide) <0.01, 0.001 (new test sensitivity)
2016: <0.01, <0.01, PCRU, 0.002 (Adelaide)
2015: <0.01, <0.01, <0.01, 0.013
2014: PCRU, <0.01, <0.01, <0.01, <0.01
2013: 0.01, 0.014, 0.016, 0.026, 0.041, <0.01, <0.01
2012: <0.01, <0.01, 0.013, 0.032, 0.021
2011: 38.00, 12.00, 0.14
Advanced Member
Posted 31 May 2014 - 10:32 PM
Congratulations, Josh!! I am also a turtle. Slow but steady wins the race. . .
Marnie
New Member
Posted 02 June 2014 - 08:13 AM
Well done Josh! I am also a slow responder and in the "zone" between CCyR and MMR. You give all us slow responders great encouragement and that we must just hang in there.
Take care,
Vanessa
0 members, 1 guests, 0 anonymous users
