Thanks for the input. Yes, I have tight waves on the top and waves all over and some curls. Wild! So it might revert? This journey has been interesting, I must say! I also now have some weird skin thing called granuloma annarulae which causes me to have spots. I get steroid injections sometimes but still have spots. Not supposed to be related to Gleevec, but who knows. I may have misspelled it.
Still very grateful to be ok!
I haven't read the board for awhile. It sounds like patients are starting on other things besides Gleevec these days, but there are side effects, just different? I can cope with the GI symptoms pretty well, now. Still have some muscle cramps in one foot, and eye swelling. I had some pretty severe facial swelling and throat swelling episodes that were related to my BP med, Lisinopril. Since I m off that, no more swelling. I'm a happy camper these days. Glad for Gleevec.
It is interesting to read what others who are new to CML are writing. I remember feeling like I had no compass for a while, but it's better now.
Thanks for the feedback.
Diagnosed 3/09 121,000 WBC. Asymptomatic
Imatinib 400 mg started
3/16 still PCRU but side effects worse. Stopped Imatinib for a week. Tried Sprycel 2 days.
4/16 restarted Imatinib at 300 mg.
6/16 showed 1 transcript
9/16 PCRU returned
5/1/17 Imatinib 200 mg
8/17 showed "1 transcript"
10/17 PCRU returned