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Trey , how did you do that ?


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#1 thomaskk

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Posted 11 March 2014 - 07:51 PM

I was reading one of the old posts revealing the fact that you did manage to reach CMR in an year   ......

What was your numbers at Dx ? Wbc, platlet,  HB, etc..

What was your first three months pcr ?

This info will be benchmark for many like me

Regards

Thomas



#2 Trey

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Posted 11 March 2014 - 08:48 PM

Dx: 100K WBC, 1M PLT, other stuff not really relevant.

MMR in 100 days.  PCRU/CMR in 8 months (probably only because 6 month PCR failed due to shipping error).

Started 400mg Gleevec, went to 600mg for a couple months, then back to 400mg. 

My experience is not normal, and not necessary for long term excellent response.  Overall, steady wins the race.



#3 thomaskk

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Posted 11 March 2014 - 09:00 PM

Thanks. I think gleevec 600 did the trick.  My doc is not agreeing to do so.

I am worried about resistance.  Planning to start curcumin supplement 4000 mg today. Thanks



#4 GerryL

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Posted 11 March 2014 - 11:30 PM

Don't mention the curcumin to Trey. LOL



#5 scuba

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Posted 11 March 2014 - 11:40 PM

I'm baaaack. Curcumin and all.


Diagnosed 11 May 2011 (100% FiSH, 155% PCR)

with b2a2 BCR-ABL fusion transcript coding for the 210kDa BCR-ABL protein

 

Sprycel: 20 mg per day - taken at lights out with Quercetin and/or Magnesium Taurate

6-8 grams Curcumin C3 complex.

 

2015 PCR: < 0.01% (M.D. Anderson scale)

2016 PCR: < 0.01% (M.D. Anderson scale) 

March        2017 PCR:     0.01% (M.D. Anderson scale)

June          2017 PCR:     "undetected"

September 2017 PCR:     "undetected"





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