Can anybody recommend a CML specialist in San Francisco Bay Area?
I am moving there in three months. I will be located about 30 minutes drive from Stanford University Hospital.
CML Specialist in San Francisco
Started by
Ray99
, Feb 28 2014 04:30 PM
2 replies to this topic
#2
ChrisC
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Posted 28 February 2014 - 05:25 PM
Hi Ray,
I've seen Dr. Bruno Medeiros twice at Stanford Hospital for a recommended second opinion. My onc since dx is Dr. Howard Lee at San Mateo Medical Center — he referred me to Dr. Medeiros prior to switching me to Sprycel in 2009, and in 2011 prior to my ceasing all TKIs when I had stayed PCRU for two years (and I am still PCRU 2.5 years later).
The big CML Specialist is Dr. Neil Shah in San Francisco (UCSF): http://cancer.ucsf.e.../shah_neil.3658
When you get here, welcome to the Bay Area!
ChrisC
Be alert, but not overly concerned.
• Dx Oct. 22, 2008, WBC 459k, in ICU for 2 days + in hospital 1 week
• Leukapheresis for 1 week, to reduce WBC (wasn't given Hydroxyurea)
• Oct. 28, 2008: CML confirmed, start Gleevec 400mg
• Oct. 31, 2008: sent home when WBC reached 121k
• On/off, reduced dose Gleevec for 7 months
• April 2009: Started Sprycel 100mg
• Sept. 2009: PCRU 0.000
• Sept. 2011: after 2 years steady PCRU & taking Sprycel 100mg before bed, quit Sprycel (with permission)
• Currently: still steady PCRU, testing every 6 months 🤗
— Fatigue, hearing loss continue, alas, but I prefer to think it is all getting better!
#3
Ray99
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Posted 28 February 2014 - 11:51 PM
Chris,
Thanks for the info. I will look him up after I move there.
Ray
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