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#1 Floa7

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Posted 27 February 2014 - 06:33 PM

I was on antibiotics for a r kidney infection or stone, urine test showed trace of blood, 3 weeks ago. The next week my 3 month check-up I saw my oncol Doc. Blood work was all normal, my 3 month BCR-ABL was .5% That's as low as it will go. Been on Gleevec for 2 years for CML. Last Friday still had pain under right ribs, went to ER at 1am, BP 112/60, Ekg fine, sugar 112. Still had blood trace in urine. I had a couple of morphine shots then finally got a shot of something that knocked me out. Those pains were worse then labor pains. I went to surgery at 4am had my appendix out. The appendix was size of index finger with 2 stones in it. Why blood in my urine? Should I have stopped the Gleevec? Shouldn't my WBC have been elevated? I got some questions for the surgeon when I see him next week.


1 2012 CML detected Started Gleevec 400 mg

In nov 2014 my pcr started to rise by Feb I stopped Gleevec and went onto

2 2015 Tasigna 600 mg/day

I have been PCRU for 2 years and stopped Tasigna 4 7 2017

5 8 2017 results 0.008

5 30 2017 results 0.028 

6 30 2017 results 0.3, I have restarted the Tasigna because it went above 0.1 

 

My son

11 2011 CML detected Started Gleevec 400 mg

He went 2 1/2 years on gleevec and lost PCRU

Started Sprycel went PCRU for 2 years and stopped the Sprycel, went back for 3 month checkup and PCR was 8.0

He went back onto Sprycel and now is PCRU again

3 16 2017 results 0.008

6 1 2017 results 0.002


#2 Trey

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Posted 28 February 2014 - 09:55 AM

They would seem to be unrelated.  But maybe since you had appendix stones you also have kidney stones?  Not sure they would go together either.

http://www.webmd.com...in-urine-causes



#3 Pin

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Posted 28 February 2014 - 05:50 PM

I had trace RBCs in a sample once, when they thought I had kidney stones or a UTI, but it ended up being nothing at all. I thought at the time that maybe the Gleevec could cause this indirectly (e.g., maybe the thinner blood vessels in the bladder or somewhere else might get knocked around and cause this intermittently). I can see that your case is different, but as Trey says, they might be unrelated. Have they confirmed kidney stones via a scan?


Diagnosed 9 June 2011, Glivec 400mg June 2011-July 2017, Tasigna 600mg July 2017-present (switched due to intolerable side effects, and desire for future cessation attempt).

Commenced monthly testing when MR4.0 lost during 2012.

 

2017: <0.01, <0.01, 0.005 (200mg Glivec, Adelaide) <0.01, 0.001 (new test sensitivity)

2016: <0.01, <0.01, PCRU, 0.002 (Adelaide)

2015: <0.01, <0.01, <0.01, 0.013

2014: PCRU, <0.01, <0.01, <0.01, <0.01

2013: 0.01, 0.014, 0.016, 0.026, 0.041, <0.01, <0.01 

2012: <0.01, <0.01, 0.013, 0.032, 0.021

2011: 38.00, 12.00, 0.14





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