It has been a very long time since I've been on, well not exactly, I get on and check in on people but haven't posted or commented for a very long time. Few concerns....First, husband has been having pretty bad night sweats for the last couple months, to the point of waking up completely soaked and me having to change sheets all the time again. He hasn't had sweats like these this frequently, like at least 3 or 4 nights a week, since he was diagnosed. He's fighting a bad cold, coughing a lot for a week and a half. This past Sunday he developed a nose bleed. Not just a little blood on the tissue when he blew, but a full running out the nose, used only one tissue thank goodness, nose bleed. Hasn't had one of those since diagnosis either. So, at what point does one start to worry???? He's been on 70mg Sprycel since Feb 2011. Minimal side effects, Dr Talpaz doesn't want to increase dosage because he reacts so strong to the medication it throws all his counts off whack. His PCR test in October 2012 was .055, in April 2013 was .069 and in October 2013 was .07. After all this time I sure would like to see more zero's after that decimal. Is that necessary????
I finally, with much hesitation from my hubby, contacted Dr Talpaz. He has an appointment Monday, so Sunday we make the 5 hour drive to U of M. I'm nervous. I really really really want to see a PCRU or at least a .000something. Looking at the last 3 tests I'm discouraged. I don't want to be, just don't know how not to be esp with the issues he's been having. After 3+ years is it too much to want or expect a lower PCR test result? I'm really discouraged and disgusted with things. Maybe it's starting to get to me listening to him cough all the time and having family and other say "he just has a cold" or "he's doing great, look how good he looks" and my favorite "he's getting older these things happen". One of these day's I'm probably gonna explode on someone
Thanks everyone for reading and for replying in advance. Sorry to all of a sudden pop up out of nowhere with a rambling on message.