Hey, Teds. . .if it makes you feel better, my doc was extremely skeptical about taking anything less than 100 mg of Sprycel. Finally, because of the pleural effusion(s) I was forced to. We had some miscommunication and I took a 15 day drug break (second time. . first was 9 days). He didn't intend for me to be off drugs at all. When the results came back at zero, he (and I) were completely surprised. At the appt, he started babbling on about the trials where people who have been 2 yrs PCRU have been off TKIs, some with success (I already knew all of this, but maybe he didn't). . .anyway. . .I was blown away when he commented that maybe 50 mg was my number. He even said that in 3 months, if my numbers have gone up, it still might make sense to stay at 50 mg since the side effects at 100 mg are bad. I think he's realizing that you don't always have to go exactly by the guidelines. Docs are working with patients to find what works, and the accepted guidelines have gray space now, as more information is coming in.
So. . .maybe your onc will come around, as well.
Also. . .makes me feel better to know that a blown disk is not an extremely major thing. I've never had issues so this was a complete surprise. I wasn't even doing anything when it went. I had been carrying an extremely heavy ski bag, climbing a bunch of stairs. Set things down, we sat down to relax with a cup of hot chocolate, waiting for the chair lift to open up. Went into the bathroom, bent over to start pulling clothing down and my back went "bang!" Felt like my spine was slamming down on itself. My knees buckled and I almost went to the floor. Caught my breath, went back out, did some stretches (not my back. . that hurt too much), and decided to try snowboarding. Getting on and off the lift was excruciating. Oddly enough, snowboarding down the slopes wasn't all that painful. . .but the chairlift was bad. The drive home was extremely painful. Didn't know if I'd be able to make it without husband pulling over to let me get out and walk around.
Onc's p.a. wrote a script for a muscle relaxant, and so last night I was actually able to almost sleep through the night. The two nights previous were bad. . .slept about 3 hrs each night, in half hour stretches.
Today was much better. I can't imagine how you have lived with a bad back your whole life. And remained active! Wow.
Your comment about being a turtle struck me. I've always considered myself a turtle as well. It was always so darned frustrating to hear about how quickly everyone else on the board reached PCRU. That said. . .I consider myself very lucky. I'm still pretty healthy (compared to most folks) and have a (mostly) fun and active life. Got an e-mail this morning that one of the guys in the local BMW riding club dropped dead of a sudden heart attack yesterday. About my age, a little bit older. You just never know. . .