Well I so wish I didn't have to register and join these discussion boards, because that means I'm in the same boat as many of you or your families. I was diagnosed with CML on New Years Eve, and just decided along with my wonderful Oncologist that we will be starting Tasigna as soon as the insurance battle is over.
I was able to get through my first Bone Marrow Biopsy, which was not a pleasant experience, nor did I expect it to be, but certainly really struggled to hold it together and not move. My doctor mentioned that my bones are young and strong, I am only 34, and it makes it much tougher.
So I was hoping to talk with someone else who has CML, has suggestions about getting through my next BMB I have done some reading about doing it outpatient at the hospital with heavier drugs, and that is on my wish list, I don't think I can do it again.
Also wondering if anyone is taking Tasigna and how its going for you? What side effects do you have, does it get better, I've heard the first month is the worst. Just trying to see what i can expect. Any Hair Loss?
I'm very nervous about all of this, but also feel very confident it will get better and very positive about the long life ahead of me.
Any help, thoughts, advice or support appreciated.