I am newly diagnosed and in treatment with 400 mg Sprycel for CML. Forgive me, I don't know all of the terminology or shorthand I have been reading, but bottom line is my white count was over 280K at diagnosis. They started me on allopurinol (which I am allergic to) and hydroxyurea. I was very glad to start the Sprycel and have seen steady improvement in platelets and white count. Although my Hgb is 10.5, I have been happy with my this progress....but now after complaining of burning pain in the scapular area and a chest xray...it looks like I have a PE and I have been ordered off Sprycel for 5 days.
I am worried the PE will mean they take me off the Sprycel and try something else - when it seems that TKI has been doing a very good job. Is there any way to avoid PEs and have you ever heard of someone getting changed right away or do they wait. Does anyone else have experience with this?
I guess I am just worried. Thanks for any advice. Deborah