My doctor has informed me that my iron is still not where it's supposed to be after a year on daily iron. He wants me to get an infusion on Monday. Has anyone else has one? If so what does it feel like? Are there any risks? Does it make a difference for you energy level?
iron infusion: What does it feel like?
Posted 27 December 2013 - 01:12 AM
Hi Mayra, I had one pre-CML. The main feeling I had was boredom. I believe there is a newer transfusion that is much much quicker. They watched me quite closely for the first half hour in case there was a reaction, there wasn't. If you are currently anemic then you should expect to feel quite a bit better. If you are not anemic but only have low iron stores then the effect will not be as big, however it will stop you from being anemic.
Dx Dec 2010 @37
2x IVF egg collection
Glivec 600 & 800mg
PCRU March 2012
Unsuccessful pregnancy attempt - relapsed, 3 months interferon (intron A), bad side effects from interferon
Nilotinib 600mg Oct 2012
PCRU April 2013, 2 years MR4.5 mostly PCRU with a few blips
April 2015 stopped again for pregnancy attempt (donor egg), pregnant first transfer, 0.110 at 10wks, 2.1 at 14wks, 4.2 at 16wks, started interferon, slow dose increase to 25MIU per wk, at full dose PCR< 1 for remainder of pregnancy
Healthy baby girl Jan 2016, breastfed one month
Nilotinib 600mg Feb 2016
MMR May 2016
PCRU Feb 2017
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