I have a few questions, but first I guess I'll just give a summary of my situation. I had been on tasigna 400 mg twice daily, then lowered to 300 mg twice daily for a few months, then I found out I was pregnant in July. Almost exactly 3 years on treatment. Of course I stopped taking the tasigna right away, and at that time my last test was 0.005%, went off meds and 2 months later it went up to 0.012% and last month it was already 2.52%. My cbc is completely normal, and so are all other tests. Right now I am on the 'wait and see' protocol and am due for an appointment. The oncs want to start interferon if progression gets too bad before baby is born and I'm not due until March and I'm 23 weeks pregnant, 17 weeks til my due date.
Ok, so my question is, does anyone know or have you heard of any other safe treatments for CML during pregnancy, that do not involve as many side effects as interferon? I have heard it is absolutely awful. And how bad is it okay to let things get? I mean, I have heard of women not being treated until their wbc was into the 60,000 range and right now mine is normal. I'm just hoping to be able to finish the pregnancy without any meds, but the doctors don't really offer much advice. Just thought maybe there is someone out there, or maybe another woman who has been in this situation and can offer some insight. I appreciate any replies. Thanks.
p.s. I just had an ultrasound last month and baby looks completely healthy and normal thank God. I stopped taking tasigna when I was 4 weeks pregnant, just in case any of the women on here were wondering. I know there is not a ton of info out there on cml and pregnancy.