You mention low sodium. Docs keeping telling me that. Recently went to cardio and kidney doc. Kidney doc says bad kidneys due to high blood pressure, inflammation, eat low sodium. I say been on blood pressure pills and diruetics since 1997. He says still causes inflammation. Didn't think of it tiill I got home, but my labs have shown low sodium and potassium for years, I assume it was from diuretics. Now go figure that one, low sodium on labs for years but tell me to restrict sodium. The truth beknown, I don't believe it is from sodium or blood pressure, I believe it is from the Gleevec, but no doc is going to admit to that. Well I take that back I recently went to my cardio doc. I said You know funny thing but I was off Gleevec, and all my med's for two months, no high blood pressure no swelling of hands no puffy eyes. Than I went back on gleevec and after a few weeks, all the same problems. But doc always says it is not gleevec. The cardio doc smiled and he said, but no doc is going to admit to the toxic side effects and kidneys because of meds they put you on" (inless of course they want to put you on a more expensive drug that needs more guinea pigs) He was the most honest doc I have had in a long time. In fact it is funny the lab they try to hide from you. My new primary gave me several pages of labs. But when I looked it up on the portal, it showed a page with the iron levels and my ferritin was way, way out of range, almost double what it should be, strange he forgot to give me that page.
Just saying, they (docs) don't tell you or admit to a lot of things. Still fell like the guinea pig. Was told 8 years ago there would be a cure right around the corner. Truth being I will be on one of these drugs rest of my life, they might as well tell it straight. Also they don't want to admit anything wrong with kidney, yet GRF it is in black and white, and I am over 65 years, I can't take these standard dose drugs!!!! Even the pharmacy told me, don't be taking any standard dose with your age and kidneys. Than they (docs) say creatine good, but kidney doc says cretatine doesn't get bad until you lose 65% or more of the function of your kidneys. I guess the CML docs rule over all the other docs, but I put my kidneys and vital organs right up there. I ask cardio doc now how long do you think I would live on a kidney dialysses with CML and these drugs. Cardio doc says not long!! I think it told it straight course noone else in the room just me and him. He would probably never admit that to anyone else.
Sorry but after riding this rodeo for 8 years lot of things they don't tell you about and even fib to you about. Cardio doc said your just doing your own study right, yep that right. I am going to die of something and I figure it might as well be with a quality of life what time I got left and sitting on the beach or at the crab shack with some freash sea food.
Just saying in my humble opinion it most generally is these toxic pills. Low dose for me. Yea why don't they don't studies with low dosage even if you are not PCRU, as long as you stay stable in a range. Even my vet's tech nurse who was an oconology nurse said the same thing. So did the nurse at St Vincent Hopital when I went to see my brother. Toxic drugs, go for the low dose!!