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Anyone with CML in the Buffalo area?

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#1 Mschmidli



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Posted 16 October 2013 - 07:47 PM

Just wondering. Would be nice to talk one on one with someone going through the same thing.

I was diagnosed April 2013. Have been taking 400mg of Gleevec per day since then. Last test in July showed 2.24% IS. Next test coming up next week. Hoping its even lower. Previous test was 2.5% so it didn't really go down at all from June to July. Not sure if that's normal or not.

#2 Rissa



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Posted 24 October 2013 - 12:04 PM

I'm not from New York.  Have you tried the National CML Society? 


Also, you can connect with others in your area through CML Earth.


#3 cfroncz1


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Posted 07 November 2013 - 02:18 PM

Hi Mschmidli,

I am from the Buffalo, NY area. Was diagnosed with CML 2.5 years ago. Are you going to Roswell Park for treatment?


#4 Mschmidli



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Posted 11 November 2013 - 07:31 PM

Hi Cheryl

Yes I go to Roswell. Do you go there too?

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