Does anyone know if there is a CML specialist in or near Wisconsin?
Posted 15 October 2013 - 12:42 PM
Dr Talpaz is certainly a top pick. I go to Dr Litzow at Mayo in Rochester MN. I have found both himself and his NP Darcy to be wonderful. He will spend the whole afternoon with you if you have questions, and will answer them completely. I go to Dr Litzow for my milestone checks, and my local oncology center for blood work and labs. My NP in the Cities used to work with Dr Litzow at Mayo, so there is great communication between all concered parties. Hope this helps, Jack
PS: The intervening time between the labs and appt can be spent perusing the Mayo art collection, incredible!
Posted 16 October 2013 - 06:05 AM
I live in north central Iowa and I've had the same experience at Mayo - I see Dr. Letendre. Mayo docs also work well with our local cancer center. At this point in time I only see Dr. L once a year. That bummed be out until I realised that he needs time for his patients that are much sicker than I. The art work is incredible; that alone is worth the trip to Rochester! So is the Mayo museum, I spent a morning there when my husband was having surgery.
Hope you are well.
"You can't change the direction of the wind but you can adjust your sails."
DX 12/08; Gleevec 400mg; liver toxicity; Sprycel 100mg.; CCyR 4/10; MMR 8/10; Pleural Effusion 2/12; Sprycel 50mg. Maintaining MMR; 2/15 PCRU; 8/16 drifting in and out of undetected like a wave meeting the shore. Retired 12/23/2016! 18 months of PCRU, most recent at Mayo on 7/25/17 was negative at their new sensitivity reporting of 0.003.<p>
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