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The elusive MMR

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#1 Mayra



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Posted 25 September 2013 - 07:25 PM

Just heard back from my doctor and I received my latest PCR:

   Lab Standard.              International

12/12                3%.                           Not Done

2/13                  .37%.                             6.29 %

5/6                 Not done                          6.49%

6/26.              Not done.                          0.4602

9/18               Not done.                          0.2056

I am so happy to see the numbers going down!!!   But I'm a little disappointed I'm not MMR.  This is still good right?  What happens worst case scenario if I don't make MMR by 18 months?  Will I still have the chance of a normal life expectancy?



#2 Trey


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Posted 25 September 2013 - 08:25 PM


You were diagnosed on 12/12/12, and your 9 month PCR shows you are nearly MMR.  That is an above average response which many would like to have achieved in such a short time.  You are only halfway to 18 months so you are doing very well.

I would say your chances of normal life expectancy are very high, just as with 95% of us.

#3 Mayra



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Posted 25 September 2013 - 09:09 PM

You're right Trey!  I will only look at this from the positive end!  I'm almost MMR.  Thanks for the guidance.  I appreciate it.

#4 GerryL


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Posted 25 September 2013 - 09:21 PM

Hi Mayra,

It's hard not to want to get to the major milestones quickly - I had my second BMB at 4 months, with my new doctor, just before it I mentioned to him that I was hoping for MMR. He thought it was really great news to tell me that I had reached CyCR.

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