I want to let peeeps know about a real concern with tasigna (Nilotinib). Where to begin?
In January I had an episode of dizziness and hear palpitations (after taking cipro) that was chalked up to Benign Paroxsysmal Positional Vertigo in the hospital. Prior to the diagnosis I wss given a carotid artery test scan for both sides. The left side was not significantl occluded and and the right side was noted as less thn 50 percent stenosis at that time. I went along, going about my business and taking my meds. Recently (August 24, 2013 I suffered a stroke (Right Occipital) and ws hospitalized for nine days. During the days in the hospital I was visited by the vascular surgeon (an awesome guy) who also requested a carotid scan and MRI. This time, however there was stenosis of greater than 95% and blood was essentlally not going through, threreby creating a series of TIA's (mini strokes ) until finally I had the stroke on 8-24. I was informed of a dangerous surgery for me (only becuase there was little time between my stroke and the surgery date ) and told if I didnt have the surgery there was a great liklihood that I would have another (possibly life threatening stroke) if I didnt have the surgery. I had the surgery (carotid endarterectomy) which is normally a relatively safe procedure and never suffered a hemorrhage (thank God).
My neurologist says that the blockage I had in january and the blockage I had in August do not jive and that Tasigna probably had a role in the block. For now, the plan is to stay on tasigna and check for re- stenosis every month. Please get those hearts checked out and those arteries scanned on a regular basis, people. I know it is just another thing to worry about in this crazy disease we carry but your life may depend upon it. I got lucky and am thankful. Somebody may not be as lucky as me. Please get them done on a regular basis.