Yesterday was my 1 year anniversary of my CML diagnosis. I am in MMR with PCR of 0.06% as of June. I take 600mg of Gleevec daily (we are talking about reduction of dose), and I have had minimal side effects.
This summer I started running again, and I have been playing tennis again for 6+ months. I had experienced occasional muscle cramps, but they got worse this summer. I also feel lie my ankles are more swollen than usual (slightly puffy ever since I started Gleevec). I chalked it up to dehydration from running, heat/humidity, etc and tried to really focus on drinking more water.
I see a community onc every 3 months to help cut down on my travel to my CML specialist, and they keep each other up to date on my progress, labs, etc. My CK has been borderline high for some time now, but it is holding steady just above the normal range. Last week, my local onc tested my magnesium & calcium levels to see if that could be related to my muscle cramping, and it turns out I have low magnesium. The nurse called at 430 on friday, so I didn't get a lot of info other than they had called in a supplement.
Does anyone have this same problem? I don't think Mg has been tested before now, so I don't know how old or new the problem is. Is it something caused by Gleevec? By CML? Just trying to get a better grasp on it. I looked at foods high in magnesium, and I actually eat almost all of them on a regular basis. I also take a vitamin.
Any thoughts, resources or similar experiences would be helpful. Thanks!