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Please keep BJ Rainer in your thoughts and prayers


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#1 lehrerin

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Posted 22 August 2013 - 09:40 AM

Those of you here for a while all know about BJ, the college student with CML, and his journey.   Things are not going well right now, and he could use our prayers.  

You can read about it on his Caring Bridge Page.

http://www.caringbri.../visit/bjranier



#2 LLawrence

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Posted 22 August 2013 - 09:50 AM

Thanks.  Adding my prayers for him and his family.



#3 LivingWellWithCML

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Posted 23 August 2013 - 12:55 PM

Appreciate you sharing this update.  I followed BJ's journey pretty closely for a while ... he is a very tough and optimistic young man.  He had been doing well, and I assumed that he would get back to his college studies, golf, and resume his life post-transplant.  Although I don't know him personally, I am saddened to read about his decline and will be thinking of his whole family.

His case was pretty rare.  If I recall, he reached a stable & comfortable MMR on Gleevec within 18 months, but then CML came roaring back and progressed from MMR to blast crisis in a matter of weeks.  He even made the NBC National News broadcast while at Cleveland Clinic undergoing his transplant, which was really cool to see.  I was particularly inspired by how much he retained his strength and endurance by hitting the treadmill / stair climber during conditioning.

Very sad right now :-( :-(, but I will keep hope for a turnaround ........

Dan


Dan - Atlanta, GA

CML CP Diagnosed March 2011

Gleevec 400mg


#4 Teresabourgeois

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Posted 23 August 2013 - 01:38 PM

I'm so sad :(.  He hasn't responded in two days and he is sepsis.  What a struggle this very young man has had.  Praying praying!!!



#5 Susan61

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Posted 23 August 2013 - 09:48 PM

I do remember BJ and his journey.  If everyone prays, it might turn things around for him.  I will Pray consistently for him to do better.  Please keep us updated on his progress.

Susan



#6 Pin

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Posted 26 August 2013 - 07:09 PM

I am so sorry to hear this about BJ and his family, they have been fighting so hard.


Diagnosed 9 June 2011, Glivec 400mg June 2011-July 2017, Tasigna 600mg July 2017-present (switched due to intolerable side effects, and desire for future cessation attempt).

Commenced monthly testing when MR4.0 lost during 2012.

 

2017: <0.01, <0.01, 0.005 (200mg Glivec, Adelaide) <0.01, 0.001 (new test sensitivity)

2016: <0.01, <0.01, PCRU, 0.002 (Adelaide)

2015: <0.01, <0.01, <0.01, 0.013

2014: PCRU, <0.01, <0.01, <0.01, <0.01

2013: 0.01, 0.014, 0.016, 0.026, 0.041, <0.01, <0.01 

2012: <0.01, <0.01, 0.013, 0.032, 0.021

2011: 38.00, 12.00, 0.14


#7 mamawarrior

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Posted 26 August 2013 - 08:28 PM

Tracy,as a mom,my heart breaks for you. I am so sorry as i read your cb site. (((Hugs)))



#8 Lizzybee

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Posted 27 August 2013 - 09:27 AM

http://www.legacy.com/obituaries/ohio/obituary.aspx?n=basil-james-rainer-bj&pid=166643066&#fbLoggedOut

I am just heartbroken for him and his family.

The link doesn't seem to be working correctly.  If you go the caring bridge page linked above, the link to the obituary is available there.  It's a very moving tribute to BJ and well worth taking the time to read it.



#9 pamsouth

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Posted 27 August 2013 - 01:23 PM

Am deeply touched and sadden by the loss of our young college student BJ.  Praying for family and friends. Praying for a cure!

Obituary,

Memorials may be made to help build Norton's new athletic complex, which honors BJ the football player and Deanna the track star. (Norton City Schools Foundation, memo: Stadium Project, P.O. Box 1012, Norton, Ohio 44203) or The Leukemia & Lymphoma Society, (888-557-7177), whose research provided the many treatment options available to BJ. BJ would also be honored to save other lives by encouraging you to register to be a marrow donor (bethematch.org). His generous donor from Germany gifted him with two years of love and life.

"He dug his heels in and never wavered, no matter the opponent, no matter the disfavor. He grinned and bared it and now he can rest, Forever our hero, forever the best!" BJ's legacy will forever live on in the many hearts that he has touched. Love You Forever BJ! - See more at: http://www.legacy.co...66


PamSouth


#10 nathaliece

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Posted 27 August 2013 - 07:12 PM

It is heart breaking to hear of BJ's passing and a reminder of how precious life is.  My prayers are with his family.  I plan to make an extra effort to appreciate each day as a tribute to him.

Nat



#11 Susan61

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Posted 27 August 2013 - 07:32 PM

Thanks for posting that Pam.  I could not get it to come up to read it.



#12 Susan61

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Posted 27 August 2013 - 07:39 PM

My prayers go out to the family, as they are the one's now who need the strength.  How true that we need to appreciate every day that we have no matter what is going on in our life.

I Thank God Every Night for the day I had, and then again in the morning for the new day ahead.

BJ is with the Lord now, and in a better place than we are.



#13 GerryL

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Posted 27 August 2013 - 11:35 PM

Hi Susan,

Try this

http://www.legacy.co...j&pid=166643066



#14 Skittles

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Posted 28 August 2013 - 07:28 AM

I haven't posted in a long time though I do try to keep up with what's going on here.  I have to add my prayers for BJ's family and extended family.  He truly was a brave warrior in his CML fight.  His obituary is one of the most beautifully written obituaries ever and rightfully so.

Heartfelt thoughts and prayers to his family.  Skittles






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