My husband was diagnosed on July 18th with CML he was sent to the ER from a routine blood test with a WBC of 300,000. He started Hydrea until we received Tasigna on 8/2. He was having some vision problems and went to Optometrist on 8/6 who advised him to go to Wills Hospital in Philadelphia. He has hemoraging in the blood vessels behind his eye, they immediately admitted him back into the hospital 8/7 and did four rounds of Leukapheresis, which brought his WBC down to 43,000. His vision is getting better but not totally back to normal. The Oncologist says he doesnt' know what the number has to come down to for it to be back to normal and he has never seen this in a patient with Chronic Leukemia only patients with Acute. Just wondering if this has happened to anyone with this diagnosis and if so did you ever regain your full vision back that you had prior to diagnosis?
Appreciate any response as well as guidance you can provide, obviously this is all new to us so we are trying to understand it all.