I recently moved from 100 MG of Sprycel to 70 MG, but it looks like my white blood cell counts are dropping again. My expectation is that if this happens, I will move to 50 and then to 25 if it keeps happening. I'm having trouble finding information about how common this is. All I can find is that about 24% of people have some sort of myeloid suppression on Sprycel, but I can't find any data on the following:
- Of those 24%, how many find that 70 MG, 50 MG, or 20 MG work for them?
- My doctor mentioned that if I'm experiencing myeloid suppression, then the chances are that I'll have similar reactions to other TKIs (although he said, in the unlikely event it came to that, then we would probably try another one before considering something more drastic like a BMT). Has anyone in the group heard something similar?
I'm trying to give myself a realistic look at what my future looks like in relation to these drugs, but I'm having a hard time finding good data.
Anyone know where some good stats are on this? Or have their own experience that might help?