All
I am interested in getting contact lenses again. I had them years ago pre-cml. Is there any reason why I should not get them because of either having cml or Sprycel 100 mg? I do not think so but wanted to check. thx Mike
contact lens question
Started by
mdszj
, Jul 09 2013 04:36 PM
7 replies to this topic
#1
mdszj
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Posted 09 July 2013 - 04:36 PM
dx cml 7/2012; 100 mg sprycel; splenectomy 9/2012; reached prcu 10/2013; dx smoldering myeloma 1/2015; 80 mg sprycel 12/2015; 50 mg sprycel 7/13/16; discontinued sprycel 11/15/16
#2
janne
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Posted 09 July 2013 - 05:18 PM
When I went in for a recent ophthalmology checkup this year, actually the first one since I started TKI's in 2008, he told me my eyes were EXTREMELY dry however he did not specifically attribute that to the medication. Otherwise my exam was normal.
Dx'd: 8/2008. Started Gleevec 400 mg 11/08.
Drug break 2011.
Started Tasigna 4/11 450 mg.
Reduction to 300 mg Tasigna 1/2012.
PCRU 9/2012.
12/2012 Detectable.
PCRU 4/2013 through 3/2015. (Reduced to 150 mg 7/2014)
12/2015 ? slightly detectable at probably less than 0.01% per Mayo Clinic.
4/2016 PCRU. Still at 150 mg Tasigna.
CESSATION: stopped treatment 7/20/2017.
9/6/2017: barely detectable at 0.01%.
12/11/2017: PCR at 0.09% (did not do the monthly PCR testing.)
12/18/2017: Inevitable call from Onc. Started back on Tasigna at 150 mg. (Considering Sprycel low dose.)
#3
Trey
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Posted 09 July 2013 - 07:41 PM
The dry eye issue can be a problem. It is for me. Otherwise it should be fine.
#4
mdszj
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Posted 10 July 2013 - 01:22 PM
Janne/Trey thx I just checked w my hemo and he also said no problem.
dx cml 7/2012; 100 mg sprycel; splenectomy 9/2012; reached prcu 10/2013; dx smoldering myeloma 1/2015; 80 mg sprycel 12/2015; 50 mg sprycel 7/13/16; discontinued sprycel 11/15/16
#5
Tedsey
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Posted 10 July 2013 - 04:17 PM
Ironically, my ophthalmologist's wife has CLL, so it turns out he is well versed in leukemia and the eye. Anyway, I have always had dry eyes. I could never wear contacts over 2 hours. I don't notice a difference on Sprycel. Nevertheless, I get a prescription for contacts every year. Never heard you cannot wear them on a TKI.
Good luck,
Teds
#6
Guest_billronm_*
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Posted 10 July 2013 - 11:36 PM
They make contact lenses that provide a lot more moisture now Too, so you shouldn't have a problem. And there are a lot more eye drops for dry eyes. Billie
#7
mdszj
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Posted 11 July 2013 - 04:45 PM
All - thanks for your input on this, Mike
dx cml 7/2012; 100 mg sprycel; splenectomy 9/2012; reached prcu 10/2013; dx smoldering myeloma 1/2015; 80 mg sprycel 12/2015; 50 mg sprycel 7/13/16; discontinued sprycel 11/15/16
#8
matt92711
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Posted 17 July 2013 - 01:50 AM
I prefer to wear glasses, but when away on vacation doing a lot of outdoor activity I like using contacts. My eyes have been dry since starting Tasigna, but the few days I have worn contacts I have not had any issues. Only thing I can think of is on the days your eyes are really bothering you wear glasses.
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