I was diagnosed with CML in June 2009. I've been on Gleevec, Sprycell and Tasigna. The illness was suppressed for all this time but has flared up again. My haematologist says that I am part of the 30% of patients who become resistant to this group of drugs. The options I have for treatment going forward is a bone marrow transplant. I only have a sister who is being tested now as a donor - waiting for the results. I can take a drug called Bosutinib which was only registered in the US in Sept 2012 and given conditional marketing in the EU in March 2013. It is still in the trial phase in my country.
My questions are:
Has anyone had a bone marrow transplant and can you share you experience with me. I am petrified of the whole procedure - I have not had chemotherapy or a transplant before!
Is anyone on Bosutinib and if so, let me know the efficacy of the drug and also what side effects you've experienced.