I'm new to the forum but not new to CML. I was diagnosed in November 2002 and was put on Gleevec right away. I've actually been doing fine on Gleevec. I do have some symptoms (weight gain, muscle cramps sometimes, a little bone pain every now and then) but otherwise I think I'm ok. So much so that many years ago I decided to get off of CML boards and forums and just start moving forward, living my life, and stop focusing on the CML since Gleevec had it under control, know what I mean? I take my meds regularly, of course, and go to all of my scheduled doctor appts but otherwise I sort of ignore that I have this. In this regard, I haven't kept up with new meds, treatments, etc.
The other day my onc spoke with me about switching to Tasigna and taking part in a 5-year study to study patients on Tasigna, etc. I'm reading through the patient info now and have an appointment with my onc later today to discuss it further. I really don't know what to do. I'm thinking if I'm ok on Gleevec, why change? It's also a bit of a lifestyle change taking meds 2x a day as opposed to one Gleevec pill in the morning, changing my meal schedule, etc. Also - I don't mean this to sound the wrong way - but occasionally I meet my girlfriends on a Friday afternoon for a drink or two or sometimes the hubby and I will have a glass of wine in the evening. Does all alcohol consumption have to stop or is the very occasional drink ok? Sometimes when I'm out of my regular routine (weekends, vacation) I accidentally forget to take Gleevec that day. I will try with all of my might not to forget to take Tasigna but I can't rule out accidentally forgetting every once in a while.... I don't know. I guess I'm just afraid of something new. I've read Tasigna is mostly for those not doing well on Gleevec but I'm ok. My onc says it could be better though. Would appreciate any advice, experience, etc. in helping me decide whether to make the switch or not! Thank you!!!