I was recently diagnosed with CML after going to the doctor on April 12th. I had gone in for what I thought was stomach pain, but turned out to be an enlarged spleen. Subsequent blood tests showed my WBC to be at 268, and I had to spend the weekend in the hospital while they got more of a handle on it. They did a bone marrow biopsy and other blood work that verified the original diagnoses. I was sure freaking out at the beginning, not knowing that they had developed these wonder drugs.
So... I'm currently on Tasigna at a 300mg dose twice daily ( started 1 1/2 weeks ago). This is complemented by 1500mg of Hydrea daily to help lower the white cell count ( My doctor tried taking me off the Hydrea after starting Tasigna but my WBC jumped 45,000 in two days). I guess we are in a wait and see mode. My doctor wants to get my white cell count down lower to see if Tasigna will start working. My question here tho, would it be advisable to get a second opinion from a CML 'Specialist'? I live in Houston, and we do have the MD Anderson Cancer Center here. My current oncologist/hematologist seems like he knows what he is doing, but I can't stop wondering if there is something more I should do.
Maybe I'm just stressing too much? I've been reading and searching the internet non-stop for the past 3 weeks, trying to soak up as much information as possible on this type of cancer. I just don't know what to do. I'm 3 weeks in to treatment and my WBC is down to around 115, with platelets over 1 million, and low red cells.