4 replies to this topic

[WoofWoof]

I've written here about my rashes so to continue to bore the group, here's the latest:

Stop Sprycel for a month more/less, then restart with a much lower dosage. I'm now on 100mg/day the restart will be 20mg and then slowly increased.

Also, I'm again on the miserable Prednisone and also steroid topical ointments.

By the by, yesterday my onc. (a CML specialist) was shocked to see how quickly and extensively my rash was but vowed to beat it.

[CallMeLucky]

I can't relate, but I can see how this is happening.  I'm on 50mg and I have rash all over my upper arms and a little on my face and neck.  It doesn't really bother me so I ignore it, but I can imagine if it was irritating how much of a problem that could be.  Tough stuff these drugs....

[Trey]

Sounds reasonable but I would not wait much longer to switch.  Maybe Bosulif since you already tried Gleevec, Sprycel and Tasigna.

[momruns]

I am not a person that gets rashes, BUT.  Drug #3 Bosulif , after 10 days - total body rash everywhere except hands, feet and face/neck.  Thank God it does not itch.  Stopped med and will talk when rash is cleared up.  Gleevec could not take because of low ANC, Sprycel because of mouth sores, wondering what is next. 

Good luck let us know if you rash with new drug

Loreta

[Trey]

Good input and I am not surprised, but we are all different and he has already tried the 3 main drugs.  Trial and error is the only option.