Posted 07 April 2013 - 01:09 AM
FWIW note from one who may no longer blame anything on a TKI: if it's a rash that has any blisters involved, it really helps to use a hair dryer on it. The heat of the hair dryer "resets" the nerves, from feeling itching to feeling burning and also dries the surface of the itchy rash. (I just learned this online: I seem to attrach fleas when visiting folks with pets, and I have a strong reaction to the bites; in an effort to repell the fleas, I've tried using neem oil and tea tree oil, in a base of jojoba oil,, and have had allergic reaction to one of these oils as blistery rash on my hands . . .). Then, funnily enough, you spray hair spray on the dried-out rash, and "a miracle!" — it really works, really fast, lasts for hours! So weird — desperation makes folk try anything, then post these their results, and others of us try their remedies . . . — I love the internet age
However, the rash I had from Gleevec way back when wasn't an itchy rash, just a visible one, so perhaps "nevermind"?
Anyway, I second Mariebow's suggestion of visiting the dermatologist. That worked for stopping my Gleeves rash then.
Good luck, very soon.
Be alert, but not overly concerned.
• Dx Oct. 22, 2008, WBC 459k, in ICU for 2 days + in hospital 1 week
• Leukapheresis for 1 week, to reduce WBC (wasn't given Hydroxyurea)
• Oct. 28, 2008: CML confirmed, start Gleevec 400mg
• Oct. 31, 2008: sent home when WBC reached 121k
• On/off, reduced dose Gleevec for 7 months
• April 2009: Started Sprycel 100mg
• Sept. 2009: PCRU 0.000
• Sept. 2011: after 2 years steady PCRU & taking Sprycel 100mg before bed, quit Sprycel (with permission)
• Currently: still steady PCRU, testing every 6 months 🤗
— Fatigue, hearing loss continue, alas, but I prefer to think it is all getting better!