I was dx in 11/10 and have been on 400 mg Gleevec since the beginning. I have been PCRU, thankfully, since 3/12. Over the past several months the bone pain has increased both in terms frequency and intensity to the point I question if I can handle it while working full time and being a single mom. The plan is to finish my current script of Gleevec, take a one week vacation from meds and start Tasigna on 4/22 if the EKG and thyroid testing checks out. The literature I received today at my oncology appointment shows bone pain as a side effect of Tasigna, along with potential heart and thyroid damage. I would love to hear from those of you on Tasigna, particularly those who have also been on Gleevec. I acknowledge we all react differently but this board has been so helpful to me during this journey.
I did try to persuade my oncology team to consider a lower dosage of Gleevec without success.
All my best to all of you,