I got home Sunday, I feel great, I went to see my pcp yesterday for my follow up my lungs are nice and clear ! Yeah My last chest x-ray was Saturday and it was good so they let me out Sunday instead of Monday like they said earlier. I guess they were giving me heparin shots to prevent a blood clot, the first couple days I wasn't allowed out of bed except to use the br. Maybe because my left carotid artery is completely blocked they gave me the heparin, I really don't know why they did what they did and why they kept me in the hospital for so long all I know is I feel great now. I'm sure the Sprycel break is making me feel better too.
I was doing really good on Sprycel as far as side-effects go, but the low iron and anemia now the pe I doubt my doc will even consider it again for me.
Tedsey, A PE isn't real common so just because some of us got one don't be afraid you'll get one. I read that Sprycel can cause congestion and I've had that since I went on it 2 1/2 years ago so I stayed on the lasix that I was taking from when I was on Gleevac. I had mouth sores off and on but not as bad as you get. The bmx solution helped me a lot. I've always been a fanatic about brushing my teeth I dip my toothbrush in baking soda,then I put toothpaste on my brush I start brushing then I dip my toothbrush in a capful of peroxide and brush until I'm foaming at the mouth looking like I have rabies then whatever is left of the peroxide I rinse with it, then I take my dental floss and dip it in the baking soda and I floss then I rinse and use mouthwash, then I take a nap and wash my face and put lots of wrinkle cream on. Do you think I have a little bit of OCD? Maybe the peroxide helps with the mouth sores.
Pat, I'm sure glad you're finally feeling better, I know that you had a lot of pain, I didn't have any that's why I didn't think about a pe, but when I would bend over I felt this like twinge or even a thump in my chest on the left side just like you described but I thought it was my heart, you know how it's hard to describe. Now we know.
I just brushed my teeth so I'm going to bed so I can get up and start all over again.
Thank you all for being here for me, even though I haven't been around much lately. Love Billie