I am feeling a lot scared. I was originally diagnosed with CML in June 2007. I, like so many others in our group became religious about my treatment plan, this board and any information I could find. Again, like many others I became complacent about things after some time. I had been going along in my life like nothing was wrong. I went from Gleevec (600 mg) to Tasigna 800 in 2011 because Doc recommended. By that time I was completely confident in my Doc and felt like he knew his business and I still believe he does know his stuff. Stronger TKI= no leukemia (I hoped forever).
My BCR- ABL was .000 in September. Doc told me things were great. Had another test in January and doc told me that it was .0200 (not sure if this is correct number but he basically told me that it was back. He recommended a BMB and aspiration (coming Monday) and a trip back to Shands where I had previously seen Dr. John Wingard. I am really scared. I know that Ponatinib is out there but am I heading toward Accelerated/blast crisis/T315I mutation? I am feeling symptoms I had never even paid attention to like little red bumps and itchy skin/scalp. He is also going to re-check BCR-ABL in one month. What do you think???