was dx on March 26th 2012
White count at dx was 218,000 with every other blood testing's
either sky high or sky low.
Started 600mg a day on Tasigna on April 18th
on May 7th WBC was at 7.2 with all other tests going down.
I have absolutely no side effects from Tasigna. I feel great
I thought everything was going good, as of yesterday, I went to my dr. for a 10 month checkup and here is what he tells me.
I have had 4 BCR/ABL tests.
First one was 98.7%
Second one was 1.47 of total of abl on 7/24/2012
Third one was 2.2% of total of abl in October 24th equivalent to 5.8% on the international scale
And my last one which was done January 14th 2013
is 1.9% of total of abl equivalent to 5.0% on the international scale in which .01% is considered a Major Molecular response
My dr wasn't that pleased with these results, he thought I would be closer to the .01% this time. He showed
concern that if I don't get closer in the next check up which is going to be in April, that another bone marrow will be necessary and maybe switching
meds.. I sometimes wonder about my dr. and want to know if this is something to really worry about. I thought I read that some people never get
to the Major Molecular response and are doing just fine.
that if a person is doing good on their tki meds just to leave well enough alone! I do not want to try a different tki if I don't
have too. I know you are suppose to trust your dr. in what he says, but on this one I want to have your opinions.
What are your thoughts on this? He just made it sound so bad....is it?