so, in spite of up and down results on my bcr-abl tests over the course of the last 15 months, i had a new BMB (actually because after up and down results and a new onc, we wanted to make sure there were no new mutations), and i'm at MMR! my onc is offering the option to switch to either sprycel or tasigna and push for 0 so i could look at a treatment vacation. i'll think about that later, for now, i'm so excited.
i'm at MMR! happy dance!
Started by
ritan/
, Jan 10 2013 04:21 PM
10 replies to this topic
#2
CallMeLucky
-
- Members
-
- 216 posts
Advanced Member
- LocationCT
Posted 10 January 2013 - 05:02 PM
So awesome.
I love hearing when anyone achieves a significant milestone, but it is extra sweet when it is someone who has had a rough go of it and overtime manages to overcome.
Congratulations, I am really happy for you.
Date - Lab - Scale - Drug - Dosage MG - PCR
2010/Jul - MSKCC - Non-IS - Gleevec - 400 - 1.2%
2010/Oct - MSKCC - Non-IS - Gleevec - 400 - 0.25%
2010/Dec - MSKCC - Non-IS - Gleevec - 400 - 0.367%
2011/Mar - MSKCC - Non-IS - Gleevec - 400 - 0.0081%
2011/Jun - MSKCC - Non-IS - Gleevec - 400 - 0%
2011/Sep - MSKCC - Non-IS - Gleevec - 400 - 0.00084%
2011/Dec - MSKCC - Non-IS - Gleevec - 400 - 0%
2012/Mar - MSKCC - Non-IS - Gleevec - 400 - 0.004%
2012/Jun - MSKCC - Non-IS - Gleevec - 400 - 0%
2012/Sep - MSKCC - Non-IS - Gleevec - 400 - 0%
2012/Dec - MSKCC - Non-IS - Sprycel - 100 - 0%
2013/Jan - Quest - IS - Sprycel - 50-60-70 - 0%
2013/Mar - Quest - IS - Sprycel - 60-70 - 0%
2013/Apr - CUMC - Non-IS - Sprycel - 50 - 0.036%
2013/May - CUMC - Non-IS - Sprycel - 50 - 0.046%
2013/Jun - Genoptix - IS - Sprycel - 50 - 0.0239%
2013/Jul - Genoptix - IS - Sprycel - 70 - 0.0192%
2013/Jul - Genoptix - IS - Sprycel - 70 - 0.0034%
2013/Oct - Genoptix - IS - Sprycel - 70 - 0.0054%
2014/Jan - Genoptix - IS - Sprycel - 70 - 0.0093%
2014/Mar - Genoptix - IS - Sprycel - 100 - 0.013%
2014/Apr - Genoptix - IS - Sprycel - 100 - 0.0048%
2014/Jul - Genoptix - IS - Sprycel - 100 - 0%
2014/Nov - Genoptix - IS - Sprycel - 100 - 0.047%
2014/Dec - Genoptix - IS - Sprycel - 100 - 0%
2015/Mar - Genoptix - IS - Sprycel - 100 - 0%
2015/Jun - Genoptix - IS - Sprycel - 100 - 0%
2015/Sep - Genoptix - IS - Sprycel - 100 - 0%
2015/Dec - Genoptix - IS - Sprycel - 100 - 0%
2016/Mar - Genoptix - IS - Sprycel - 100 - 0.0228%
2016/Jun - Genoptix - IS - Sprycel - 100 - 0%
2016/Sep - Genoptix - IS - Sprycel - 100 - 0%
2016/Dec - Genoptix - IS - Sprycel - 100 - 0%
2017/Mar - Genoptix - IS - Sprycel - 100 - 0%
2017/Jun - Genoptix - IS - Sprycel - 100 - 0%
2017/Sep - Genoptix - IS - Sprycel - 100 - 0%
2017/Dec - Genoptix - IS - Sprycel - 100 - 0%
#3
GerryL
-
- Members
-
- 0 posts
New Member
Posted 10 January 2013 - 05:42 PM
Congratulations on getting to MMR.
#5
Pin
-
- Members
-
- 202 posts
Advanced Member
Posted 11 January 2013 - 05:21 AM
Great news - so happy for you!
Diagnosed 9 June 2011, Glivec 400mg June 2011-July 2017, Tasigna 600mg July 2017-present (switched due to intolerable side effects, and desire for future cessation attempt).
Commenced monthly testing when MR4.0 lost during 2012.
2017: <0.01, <0.01, 0.005 (200mg Glivec, Adelaide) <0.01, 0.001 (new test sensitivity)
2016: <0.01, <0.01, PCRU, 0.002 (Adelaide)
2015: <0.01, <0.01, <0.01, 0.013
2014: PCRU, <0.01, <0.01, <0.01, <0.01
2013: 0.01, 0.014, 0.016, 0.026, 0.041, <0.01, <0.01
2012: <0.01, <0.01, 0.013, 0.032, 0.021
2011: 38.00, 12.00, 0.14
#6
Lori's okay
-
- Members
-
- 21 posts
Member
- LocationWashington DC area
Posted 11 January 2013 - 07:59 AM
Congratulations!!! It feels so good to hit one of these milestones...know that someone outside DC is thinking of you this morning and celebrating with you!!! Yay!!
Lori
DX 09-2011 PCR 8.08 not IS WBC 17 , Began Tasigna 600mg
in 2012 Tasigna 450mg/day ,in 2013-2017 Tasigna 300mg/day
DATE/PCR
09-11/ 8.08 not IS
03-12/ 0.054 not IS
06-12/ 0.035 not IS
09-12/ PCRU, 01-13/ PCRU
4-13/ 0.042 IS
7-13/ 0.014 IS
11-13/ PCRU, 04-14/ PCRU
8-14/ 0.006 IS
PCRU: 12-14/ 05-15/ 10-15/ 02-16/
09-16/ 02-17/ 09-17/
10-17 tapered off
11-3-17 Stopped Tasigna
1-15-18 still PCRU
#7
mabdou2005
-
- Members
-
- 7 posts
New Member
- LocationAlex Egypt
Posted 11 January 2013 - 02:04 PM
Congratulations, I am so happy for you.
M abdou
#8
Rissa
-
- Members
-
- 12 posts
Member
- LocationMaryland
Posted 11 January 2013 - 04:50 PM
Awesome! Congratulations!!
#9
Ray99
-
- Members
-
- 9 posts
New Member
Posted 11 January 2013 - 11:36 PM
Congratulation on achieving a major milestone.
#10
Susan61
-
- Members
-
- 43 posts
Advanced Member
- LocationNew Jersey
Posted 13 January 2013 - 03:23 PM
Congratulations!!!!!!!!!!!! Hope you celebrated after going through a lot to get to where you are. Wishing you the best at getting to 0 very soon.
#11
alexamay09
-
- Members
-
- 50 posts
Advanced Member
Posted 15 January 2013 - 04:46 AM
that is wonderful news. I can imagine how you must be feeling - have a little victory dance
alex
1 user(s) are reading this topic
0 members, 1 guests, 0 anonymous users
