Today i had recived the result of my firsrt PCR after 3month of sprycel it is 0.3 % befor it was 23% is that a flat result ?
M abdou
Is that a good result for PCR after 3 month on sprycel ?
Started by
mabdou2005
, Dec 11 2012 12:30 PM
13 replies to this topic
#2
CallMeLucky
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Posted 11 December 2012 - 01:06 PM
No not flat, that is very good! Big drop for 3 months. Congratulations...
Date - Lab - Scale - Drug - Dosage MG - PCR
2010/Jul - MSKCC - Non-IS - Gleevec - 400 - 1.2%
2010/Oct - MSKCC - Non-IS - Gleevec - 400 - 0.25%
2010/Dec - MSKCC - Non-IS - Gleevec - 400 - 0.367%
2011/Mar - MSKCC - Non-IS - Gleevec - 400 - 0.0081%
2011/Jun - MSKCC - Non-IS - Gleevec - 400 - 0%
2011/Sep - MSKCC - Non-IS - Gleevec - 400 - 0.00084%
2011/Dec - MSKCC - Non-IS - Gleevec - 400 - 0%
2012/Mar - MSKCC - Non-IS - Gleevec - 400 - 0.004%
2012/Jun - MSKCC - Non-IS - Gleevec - 400 - 0%
2012/Sep - MSKCC - Non-IS - Gleevec - 400 - 0%
2012/Dec - MSKCC - Non-IS - Sprycel - 100 - 0%
2013/Jan - Quest - IS - Sprycel - 50-60-70 - 0%
2013/Mar - Quest - IS - Sprycel - 60-70 - 0%
2013/Apr - CUMC - Non-IS - Sprycel - 50 - 0.036%
2013/May - CUMC - Non-IS - Sprycel - 50 - 0.046%
2013/Jun - Genoptix - IS - Sprycel - 50 - 0.0239%
2013/Jul - Genoptix - IS - Sprycel - 70 - 0.0192%
2013/Jul - Genoptix - IS - Sprycel - 70 - 0.0034%
2013/Oct - Genoptix - IS - Sprycel - 70 - 0.0054%
2014/Jan - Genoptix - IS - Sprycel - 70 - 0.0093%
2014/Mar - Genoptix - IS - Sprycel - 100 - 0.013%
2014/Apr - Genoptix - IS - Sprycel - 100 - 0.0048%
2014/Jul - Genoptix - IS - Sprycel - 100 - 0%
2014/Nov - Genoptix - IS - Sprycel - 100 - 0.047%
2014/Dec - Genoptix - IS - Sprycel - 100 - 0%
2015/Mar - Genoptix - IS - Sprycel - 100 - 0%
2015/Jun - Genoptix - IS - Sprycel - 100 - 0%
2015/Sep - Genoptix - IS - Sprycel - 100 - 0%
2015/Dec - Genoptix - IS - Sprycel - 100 - 0%
2016/Mar - Genoptix - IS - Sprycel - 100 - 0.0228%
2016/Jun - Genoptix - IS - Sprycel - 100 - 0%
2016/Sep - Genoptix - IS - Sprycel - 100 - 0%
2016/Dec - Genoptix - IS - Sprycel - 100 - 0%
2017/Mar - Genoptix - IS - Sprycel - 100 - 0%
2017/Jun - Genoptix - IS - Sprycel - 100 - 0%
2017/Sep - Genoptix - IS - Sprycel - 100 - 0%
2017/Dec - Genoptix - IS - Sprycel - 100 - 0%
#3
ritan/
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Posted 11 December 2012 - 01:23 PM
jeeze. i dream of that result. after more than a year i'm at 0.8.
#4
GerryL
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Posted 11 December 2012 - 07:36 PM
Hi castlefibers,
M abdou is now on Sprycel, he didn't have a lot of luck with Gleevec.
#5
ritan/
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Posted 11 December 2012 - 09:08 PM
yeah, i know. my new onc is discussing what to change me to. she wants to do a BMB first to make sure that there aren't more mutations first. but still. i totally want that result. 
#6
GerryL
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Posted 11 December 2012 - 11:41 PM
Good to get all the information so you don't wind up switching twice. I'm considering switching to Tasigna in May next year, at my next appointment, side effects from Gleece are causing me a few issues, Sprycel has fluid retention issues, which I already get from Gleevec.
#7
Trey
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Posted 13 December 2012 - 10:45 PM
That is a very good result.
#8
mabdou2005
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Posted 14 December 2012 - 03:05 AM
Thank's a lot to all . my only problem with S that my ANC is 1.01 and I Think that I can't reduce the dose to 50 mmg in that time but overall
S is so much better than G in all side effect . No cramp,fatigue no fogbrain , musle pain & i loss 6 kg from my weight without doing any diet.
All the best wishes
M abdou
#9
Pin
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Posted 14 December 2012 - 06:31 AM
This is such a great result - congratulations!
Diagnosed 9 June 2011, Glivec 400mg June 2011-July 2017, Tasigna 600mg July 2017-present (switched due to intolerable side effects, and desire for future cessation attempt).
Commenced monthly testing when MR4.0 lost during 2012.
2017: <0.01, <0.01, 0.005 (200mg Glivec, Adelaide) <0.01, 0.001 (new test sensitivity)
2016: <0.01, <0.01, PCRU, 0.002 (Adelaide)
2015: <0.01, <0.01, <0.01, 0.013
2014: PCRU, <0.01, <0.01, <0.01, <0.01
2013: 0.01, 0.014, 0.016, 0.026, 0.041, <0.01, <0.01
2012: <0.01, <0.01, 0.013, 0.032, 0.021
2011: 38.00, 12.00, 0.14
#10
mabdou2005
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Posted 18 March 2013 - 06:11 PM
Hi trey
My 6 month PCR is 0.2% is that drop is not good for 3 month ?
Thank's in rebly
M abdou
#11
Trey
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Posted 19 March 2013 - 09:30 AM
There is not much difference from the result 3 months ago, but you are still doing well. Sometimes the PCR will remain flat for a while and then start down again.
#12
mabdou2005
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Posted 20 June 2013 - 01:21 PM
Today my result for 9 month come back negative 0 % . It's one of my best day's all over my life . Thank's GOD and thank's to inventor of sprycel and all scientists how spent their life in finding away to fights CML .today i remmmember my first PCR in 2004 it was also negative which make the ONC diagnous me as ET Patient which make me very happy in that day .but today i have CML with negative PCR
THANK'S to all colleagues here how advised and support me in the last 3 years especially BIG BOSS TERY
GOD CURE ALL OF US
M ABDO
#13
CallMeLucky
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Posted 20 June 2013 - 01:34 PM
Congratulations, it is great to see that Sprycel is working so well for you.
Date - Lab - Scale - Drug - Dosage MG - PCR
2010/Jul - MSKCC - Non-IS - Gleevec - 400 - 1.2%
2010/Oct - MSKCC - Non-IS - Gleevec - 400 - 0.25%
2010/Dec - MSKCC - Non-IS - Gleevec - 400 - 0.367%
2011/Mar - MSKCC - Non-IS - Gleevec - 400 - 0.0081%
2011/Jun - MSKCC - Non-IS - Gleevec - 400 - 0%
2011/Sep - MSKCC - Non-IS - Gleevec - 400 - 0.00084%
2011/Dec - MSKCC - Non-IS - Gleevec - 400 - 0%
2012/Mar - MSKCC - Non-IS - Gleevec - 400 - 0.004%
2012/Jun - MSKCC - Non-IS - Gleevec - 400 - 0%
2012/Sep - MSKCC - Non-IS - Gleevec - 400 - 0%
2012/Dec - MSKCC - Non-IS - Sprycel - 100 - 0%
2013/Jan - Quest - IS - Sprycel - 50-60-70 - 0%
2013/Mar - Quest - IS - Sprycel - 60-70 - 0%
2013/Apr - CUMC - Non-IS - Sprycel - 50 - 0.036%
2013/May - CUMC - Non-IS - Sprycel - 50 - 0.046%
2013/Jun - Genoptix - IS - Sprycel - 50 - 0.0239%
2013/Jul - Genoptix - IS - Sprycel - 70 - 0.0192%
2013/Jul - Genoptix - IS - Sprycel - 70 - 0.0034%
2013/Oct - Genoptix - IS - Sprycel - 70 - 0.0054%
2014/Jan - Genoptix - IS - Sprycel - 70 - 0.0093%
2014/Mar - Genoptix - IS - Sprycel - 100 - 0.013%
2014/Apr - Genoptix - IS - Sprycel - 100 - 0.0048%
2014/Jul - Genoptix - IS - Sprycel - 100 - 0%
2014/Nov - Genoptix - IS - Sprycel - 100 - 0.047%
2014/Dec - Genoptix - IS - Sprycel - 100 - 0%
2015/Mar - Genoptix - IS - Sprycel - 100 - 0%
2015/Jun - Genoptix - IS - Sprycel - 100 - 0%
2015/Sep - Genoptix - IS - Sprycel - 100 - 0%
2015/Dec - Genoptix - IS - Sprycel - 100 - 0%
2016/Mar - Genoptix - IS - Sprycel - 100 - 0.0228%
2016/Jun - Genoptix - IS - Sprycel - 100 - 0%
2016/Sep - Genoptix - IS - Sprycel - 100 - 0%
2016/Dec - Genoptix - IS - Sprycel - 100 - 0%
2017/Mar - Genoptix - IS - Sprycel - 100 - 0%
2017/Jun - Genoptix - IS - Sprycel - 100 - 0%
2017/Sep - Genoptix - IS - Sprycel - 100 - 0%
2017/Dec - Genoptix - IS - Sprycel - 100 - 0%
#14
Trey
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Posted 20 June 2013 - 04:33 PM
Very encouraging to many who struggle along the way.
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