Hello folks. Have not been here in a while, to busy trying to survive and make ends meet.
Background info: dx 2007 CML, Gleevec for about 2 years. Been on Sprycel since. Have gotten to MMR on Sprycel and doing great.
However,( there's always a however or something along those lines!) I have been having BRUTAL headaches for over 3 months. I have been to
multiple doc's, following the "correct" protocol.Primary care person. specialists, others. Fell thru cracks of health care. Had 3 CT scans done,
one for sinus, one for brain and another for a mass they found on my hard pallete. Just had an MRI done to see what else is going on.
Met with Doc today, a neurologist, about that MRI. Good news, yes there is evidence of brain matter. No bad things in there!
Seems there could be issues with spinal fluid. He thinks, one could be a low pressure headache caused from leakage of spinal fluid. Another is some
infection or allergic reaction from something in spinal fluid. The third was possible result of Sprycel meds over time.
Next step is he will talk to my Onc, compare notes etc. Then possible spinal tap to check pressure, and have fluid checked.
So...has anyone had these killer headaches after a substantial amount of time on Sprycel? Has anyone heard of Sprycel messing with spinal fluid?
Just wondering. Just want these to go away.
Hope every one is hanging in there.