Advanced Member
Posted 29 November 2012 - 10:22 PM
Please send your good thoughts and prayers to my friend, Shelly, in Denver. She has had a setback in her struggle against post-transplant graft-vs-host disease. She is not doing well and is back in the hospital with extrmely serious complications. She had CLL, which morphed into Hodgkin's Lymphoma.
Marnie
Guest_billronm_*
Posted 29 November 2012 - 10:52 PM
Dear Marnie,
I have kept Shelley in my prayers since her transplant a few months ago. She must be one special strong lady, you have had a terrible year, but you have seen so many of your loved ones beat the odds. You are one special strong lady also, just remember the power of prayer love Billie
Advanced Member
Posted 29 November 2012 - 11:45 PM
Hoping for the best
Advanced Member
Posted 30 November 2012 - 05:59 PM
Thanks for the thoughts and prayers. My other friend, Kim, of the brain tumor, died very recently. It has been a rough year for many people.
Marnie
Advanced Member
Posted 01 December 2012 - 08:13 AM
Marnie,
I'm so sorry to read of your friend's serious GVHD. You Shelly, both, are in my thoughts!
Pat
Pat
"You can't change the direction of the wind but you can adjust your sails."
DX 12/08; Gleevec 400mg; liver toxicity; Sprycel 100mg.; CCyR 4/10; MMR 8/10; Pleural Effusion 2/12; Sprycel 50mg. Maintaining MMR; 2/15 PCRU; 8/16 drifting in and out of undetected like a wave meeting the shore. Retired 12/23/2016! 18 months of PCRU, most recent at Mayo on 7/25/17 was negative at their new sensitivity reporting of 0.003.<p>
New Member
Posted 01 December 2012 - 10:27 PM
Sending positive thoughts ... hope they are able to help her and get her some relief!
Advanced Member
Posted 01 December 2012 - 11:02 PM
Shelly will be in my thoughts. Hoping for the very best.
Teds
Advanced Member
Posted 02 December 2012 - 01:34 AM
Marnie, I am sorry to hear that your friend is so unwell - I will be thinking of you Shelly this week xxx.
Diagnosed 9 June 2011, Glivec 400mg June 2011-July 2017, Tasigna 600mg July 2017-present (switched due to intolerable side effects, and desire for future cessation attempt).
Commenced monthly testing when MR4.0 lost during 2012.
2017: <0.01, <0.01, 0.005 (200mg Glivec, Adelaide) <0.01, 0.001 (new test sensitivity)
2016: <0.01, <0.01, PCRU, 0.002 (Adelaide)
2015: <0.01, <0.01, <0.01, 0.013
2014: PCRU, <0.01, <0.01, <0.01, <0.01
2013: 0.01, 0.014, 0.016, 0.026, 0.041, <0.01, <0.01
2012: <0.01, <0.01, 0.013, 0.032, 0.021
2011: 38.00, 12.00, 0.14
Advanced Member
Posted 05 December 2012 - 10:01 PM
Thank you all who sent your thoughts, prayers, and positive vibes. Despite the prayers and well-wishes of many, Shelly passed away this afternoon.
Advanced Member
Posted 05 December 2012 - 10:51 PM
My sympathies, Marnie.
Pat
Pat
"You can't change the direction of the wind but you can adjust your sails."
DX 12/08; Gleevec 400mg; liver toxicity; Sprycel 100mg.; CCyR 4/10; MMR 8/10; Pleural Effusion 2/12; Sprycel 50mg. Maintaining MMR; 2/15 PCRU; 8/16 drifting in and out of undetected like a wave meeting the shore. Retired 12/23/2016! 18 months of PCRU, most recent at Mayo on 7/25/17 was negative at their new sensitivity reporting of 0.003.<p>
New Member
Posted 05 December 2012 - 11:47 PM
Hi Marnie
Deepest condolences on the loss of your friend.
"Strange is our situation here upon earth. Each of us comes for a short visit, not knowing why, yet sometimes seeming to a divine purpose. From the standpoint of daily life, however, there is one thing we do know: That we are here for the sake of others... with whose fate we are connected by a bond of sympathy." Albert Einstein
Member
Posted 06 December 2012 - 12:21 AM
Marnie, I am so sorry. May God take you through this sad time.
Advanced Member
Posted 07 December 2012 - 07:08 AM
Oh Marnie, I am so sorry to hear this terrible news and also of your friend Kim as well 
I know there is nothing I can say to help at all but I want you to know that we are thinking of you and of Shelly's family and friends from across the world xxx.
Diagnosed 9 June 2011, Glivec 400mg June 2011-July 2017, Tasigna 600mg July 2017-present (switched due to intolerable side effects, and desire for future cessation attempt).
Commenced monthly testing when MR4.0 lost during 2012.
2017: <0.01, <0.01, 0.005 (200mg Glivec, Adelaide) <0.01, 0.001 (new test sensitivity)
2016: <0.01, <0.01, PCRU, 0.002 (Adelaide)
2015: <0.01, <0.01, <0.01, 0.013
2014: PCRU, <0.01, <0.01, <0.01, <0.01
2013: 0.01, 0.014, 0.016, 0.026, 0.041, <0.01, <0.01
2012: <0.01, <0.01, 0.013, 0.032, 0.021
2011: 38.00, 12.00, 0.14
Advanced Member
Posted 07 December 2012 - 12:54 PM
Prayer to Shelly and her family.
Advanced Member
Posted 07 December 2012 - 07:13 PM
Dearest Marnie,
I am so sad to hear about Shelly. I hope you are doing OK.
Hugs,
Tedsey
New Member
Posted 11 December 2012 - 05:05 PM
Very sorry to hear about your two friends Marnie. Thinking of you at this very tough time. Rest in peace Shelly and Kim. x
Advanced Member
Posted 11 December 2012 - 06:05 PM
The thing that is so depressing is that it just seems like it is always really GOOD people who have to battle this stuff. I'm sure there are plenty of "loosers" and "bad guys" who go thru this too. . .but it just feels like everyone I know on here, or in my own life, who is battling cancer are amazing, awesome people.
I feel so badly for both Kim and Shelly's husbands. I cannot imagine the pain of losing a life partner, and I certainly cannot imagine trying to find a new normal after.
Marnie
Advanced Member
Posted 11 December 2012 - 06:49 PM
Marnie, I seem to be saying this or writing this way too often these days. I have no words of comfort, I am sorry for your loss.
Pam
Guest_billronm_*
Posted 11 December 2012 - 09:53 PM
Dear Marnie,
I'm so sorry to hear about Shelly and Kim. My thoughts and prayers are with you and their families. As Pam said I have no words of comfort either,we lose too many wonderful people to soon in our lifetimes. Sincerely Billie
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