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Made it to 40!


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#1 CallMeLucky

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Posted 29 November 2012 - 12:51 PM

Last night I couldn't fall asleep before midnight, I was tired, but I just had to wait and actually see it through.  2.5 years ago I wasn't sure I was going to make it, but thanks to good doctors and the amazing state of modern medicine, I'm defying the odds (like the rest of you) and living with what was once almost certainly a terminal illness.

I think in another universe I might be upset about hitting 40, you know the whole getting older and all.  Now I see getting old as a privilege.  I don't know how much time I have, none of us do, and the illusion I had when I was younger that there will always be more days ahead is certainly gone.  I try to make the most of each day and enjoy it as best I can.  It has been tough, but I am still here.

Hoping my 40's last 10 years and they are better than my 30's.  While a few of the greatest things in my life happened in my 30's (building my family and my career), there have been some really awful things, particularly towards the later years.  I really hope that is behind me.  I know bad things will still happen, as they say "Life is Suffering", just hoping its a little less suffering and lot more living.

Here's to me and all of you, may we all live well for as long as we can.........


Date  -  Lab  -  Scale  -  Drug  -  Dosage MG  - PCR
2010/Jul -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 1.2%
2010/Oct -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0.25%
2010/Dec -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0.367%
2011/Mar -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0.0081%
2011/Jun -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0%
2011/Sep -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0.00084%
2011/Dec -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0%
2012/Mar -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0.004%
2012/Jun -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0%
2012/Sep -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0%
2012/Dec -  MSKCC  -  Non-IS  -  Sprycel  - 100 - 0%
2013/Jan -  Quest  -  IS  -  Sprycel  -  50-60-70  - 0%
2013/Mar -  Quest  -  IS  -  Sprycel  -  60-70  - 0%
2013/Apr -  CUMC  -  Non-IS  -  Sprycel  - 50 - 0.036%
2013/May -  CUMC  -  Non-IS  -  Sprycel  - 50 - 0.046%
2013/Jun -  Genoptix  -  IS  -  Sprycel  - 50 - 0.0239%
2013/Jul -  Genoptix  -  IS  -  Sprycel  - 70 - 0.0192%
2013/Jul -  Genoptix  -  IS  -  Sprycel  - 70 - 0.0034%
2013/Oct -  Genoptix  -  IS  -  Sprycel  - 70 - 0.0054%
2014/Jan -  Genoptix  -  IS  -  Sprycel  - 70 - 0.0093%
2014/Mar -  Genoptix  -  IS  -  Sprycel  - 100 - 0.013%
2014/Apr -  Genoptix  -  IS  -  Sprycel  - 100 - 0.0048%
2014/Jul -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2014/Nov -  Genoptix  -  IS  -  Sprycel  - 100 - 0.047%
2014/Dec -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2015/Mar -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2015/Jun -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2015/Sep -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2015/Dec -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2016/Mar -  Genoptix  -  IS  -  Sprycel  - 100 - 0.0228%
2016/Jun -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2016/Sep -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2016/Dec -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2017/Mar -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2017/Jun -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2017/Sep -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2017/Dec - Genoptix  -  IS  -  Sprycel  -  100 - 0%
 

 


#2 TeddyB

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Posted 29 November 2012 - 02:31 PM

Congratulations, and cheers!

Im hoping to reach 40 one day as well



#3 Rissa

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Posted 29 November 2012 - 02:36 PM

Have a wonderful birthday Lucky! 



#4 ChrisC

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Posted 29 November 2012 - 02:38 PM

Happy Birthday, Lucky-to-be-alive! May all your most heartfelt wishes come true!

ChrisC

P.S. I subscribe to the "Life is bliss" philosophy, myself, but to each their own — the world is as we see it. . . .

It's not "Happy Birthday," Lucky, but I think they're playing your song :)) [just change "Johnny" to "Gary"]

http://youtu.be/vqkGJEkSPRk

John Lee Hooker Lyrics

" Mr. Lucky "

They call me, Mr. Lucky
Bad luck don't follow me
They call me, Mr. Lucky
Bad luck don't follow me
Everything I touches turn to gold
That mean I can't do no wrong
I woke early one mornin'
Mr. Lucky, standin' by my bed
I woke early one mornin'
Mr. Lucky, standin' by my bed
I listened to him real closely
This is what he said
'You was born for good luck, Johnny'
'Bad luck can't do you no harm'
'You was born for good luck'
'Bad luck can't do you no harm'
'I guarantee you'll never go wrong'
That's why they call me, Mr. Lucky
Bad luck don't follow me
That's why they call me, Mr. Lucky
Bad luck don't follow me
Everything I touches turn to gold
I never felt misery


Be alert, but not overly concerned.

 

• Dx Oct. 22, 2008, WBC 459k, in ICU for 2 days + in hospital 1 week

• Leukapheresis for 1 week, to reduce WBC (wasn't given Hydroxyurea)

• Oct. 28, 2008: CML confirmed, start Gleevec 400mg

• Oct. 31, 2008: sent home when WBC reached 121k

• On/off, reduced dose Gleevec for 7 months

• April 2009: Started Sprycel 100mg

• Sept. 2009: PCRU 0.000

• Sept. 2011: after 2 years steady PCRU & taking Sprycel 100mg before bed, quit Sprycel (with permission)

• Currently: still steady PCRU, testing every 6 months 🤗

— Fatigue, hearing loss continue, alas, but I prefer to think it is all getting better!

 

 


#5 PhilB

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Posted 29 November 2012 - 03:19 PM

Happy Brithday Lucky.  May your 40's last at least 14years beofre you have to give in and admit to 50



#6 BY196

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Posted 29 November 2012 - 05:45 PM

Congrats and happy birthday! I felt the same way about turning 45 in September. I hope the switch to Sprycel is going well.

Beth



#7 Marnie

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Posted 29 November 2012 - 06:27 PM

Happy Birthday!!  I can just barely see 40 in my rearview mirror!   In a "normal" life, the 40s are WAY better than the 30s. . .so you are definitely looking at coming into some GOOD TIMES!!!

Marnie



#8 pammartin

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Posted 29 November 2012 - 09:22 PM

Congratulations and Happy Birthday!



#9 Guest_billronm_*

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Posted 29 November 2012 - 09:33 PM

Hi Lucky,

  Happy Birthday, I enjoyed being in my fourtys. As a matter of fact I decided to do what Marnie is doing I'm going to stay 48!                Billie



#10 Marnie

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Posted 29 November 2012 - 10:01 PM

Billie obviously does not know how to count.  I was only 47 for 12 months, although she accused me of being 47 for years.  I have only been 48 since February, so I have a few months left.  That said. . .my sliding scale does continue to work for me.  40 - 45 = the early 40s.  46 - 48 = the mid 40s.  49 = the late 40s.  I am, therefore, still in my mid 40s!

Marnie

(Billie. . I am sticking out my tongue at you!  Pthhhhhhthtt)



#11 LivingWellWithCML

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Posted 29 November 2012 - 10:15 PM

Yeah!  Congrats....


Dan - Atlanta, GA

CML CP Diagnosed March 2011

Gleevec 400mg


#12 Guest_billronm_*

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Posted 29 November 2012 - 10:37 PM

Marnie Dahling,

I do know how to count, It is exactly 2 years almost to the day since I joined this site. And my Remarkable Memory reminds me that you were one of the first loveliest members to welcome me to our forum and you told me you were 48. I know you are a math teacher dear, but I also am exceptionally well with numbers. Just these past 11 months I had to correct my two children,that they are now older than me. And my daughter has a degree in economics, but alas she stays in denial when it comes to her true age. So I can truly understand what you are going through.

  My Dear have a hot toddy, and get a good nights rest and I'm sure you'll regain your faculties by morning. I must bid you adieu, as I have to get up early tomorrow and go shopping for a new calculator, mine seems to be broken, It's numbers don't seem to coordinate with mine. Your very dear friend Billie



#13 mariebow

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Posted 29 November 2012 - 11:27 PM

Congrats and many more.



#14 Ray99

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Posted 30 November 2012 - 10:51 AM

Lucky,

   Congratulation and Happy Birthday.  Hope Sprycel woks well for you.



#15 JMGrad

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Posted 30 November 2012 - 12:59 PM

Happy Birthday Lucky!! I hope it was wonderful! - Here's to many many more



#16 Tedsey

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Posted 01 December 2012 - 11:16 PM

HAPPY BIRTHDAY!  (and many, many, many more!).  Here is to a lot less suffering for all of us.

Hugs,

Teds



#17 Pin

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Posted 07 December 2012 - 07:13 AM

Getting older truly is a privilege but not everyone gets to learn that knowledge. Happy birthday Lucky - you are a very valuable member of this community and I wish you many, many more birthdays to come :)


Diagnosed 9 June 2011, Glivec 400mg June 2011-July 2017, Tasigna 600mg July 2017-present (switched due to intolerable side effects, and desire for future cessation attempt).

Commenced monthly testing when MR4.0 lost during 2012.

 

2017: <0.01, <0.01, 0.005 (200mg Glivec, Adelaide) <0.01, 0.001 (new test sensitivity)

2016: <0.01, <0.01, PCRU, 0.002 (Adelaide)

2015: <0.01, <0.01, <0.01, 0.013

2014: PCRU, <0.01, <0.01, <0.01, <0.01

2013: 0.01, 0.014, 0.016, 0.026, 0.041, <0.01, <0.01 

2012: <0.01, <0.01, 0.013, 0.032, 0.021

2011: 38.00, 12.00, 0.14


#18 Calalily

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Posted 11 December 2012 - 05:08 PM

Belated happy birthday Lucky! Hoping i'll be posting here to celebrate my 40th in a few years and you'll be celebrating you're 50th then! :-)






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