I tried to do this privately, but I don't get how these kidz use this innernetz today.
Few years ago, three and a few months to be close to exact, we were visited by a young lady that we, primarily you and I, had some pretty tough words with. She had been diagnosed with some weirdness, was looking here for "advice", didn't really get what she was looking for, and took you out back for a good flogging because of your medical wisdom being not from an actual real doctor. I got into it with her about how tough this stuff really is, hang in there and let the docs do what they do, they'll have to take time to figure it all out, but what you report isn't consistent with the things we are dealing with here, in this forum. She impolitely informed me that the crack team of the worlds greatest doctors, assembled by her father, were on the case, and they would correct this apparent mistake in no time. That version of this forum quickly deleted all the posts, and I don't believe she was a member here anymore.
I followed her from time to time on CaringBridge as she tried to figure out what it was, hoping it would turn out CML and she'd be back and we could all koombyeyah and all that. That didn't work out.
She ended up with some bad MDS, some pretty intense leukemia, a multitude of blood problems. Went through a lot trying to get it chemo'd and doped into control. A really really lot. Ended up in transplant in summer of 2010. That went very well.
Summer of this year, 2nd anniversary, some liver values not good. Not worrisome, but not great.
Suffice it to say, gvh of the liver brought some other problems along. Last month or so it got really bad, I communicated a bit with her or her family. I am sad to say she left the building last night, but man, she gave it heck right up to the last hours.
So whomever is having a glass of wine tonight, or a coffee or tea, lift it to Jacqui K. B. She was one of you(us), but she didn't really know it. Once she became aware that she actually was, she couldn't come back. In the interim, atonement was made for whatever happened here, with whomever, I took it upon myself to make apologies all around, and she understood.
I apologize for the publicness of this, though others may have known of her as well. I am very, very sad and sorrowed at this. I wish more than anything it had been different.
Message was edited by: Abena