I've been on 200 mg gleevec for over a year now. PCRU for many years. Diagnosed nearly 10 years ago in early stage on CML -- and got into remission quickly on 400 mg gleevec. My side effects have lessened on 200 mg which has been nice. So, now I'm wondering about stopping gleevec completely -- if lessened side effects are nice -- no side effects would be awesome. But this is a big decision.
I believe you are on 200 mgs -- and my question is do you ever consider stopping altogether? If not, would you mind sharing your thoughts with me?
Thanks -- I appreciate your help. And anyone else's opinions are certainly welcome!
Kathy