4 replies to this topic

[beverly]

I finally got the drug and was so afraid to take it I was crying last night.. My Dr. wanted me to start on 70mg for 3 months then go to 100mg. but 100 was sent instead. I emailed her and she said go ahead and take it as I have been waiting on Dr offices for a month to get it straight. I want to take Alieve for the headache. Is that ok? I do have nausea diahrea getting flu like symptoms I guess.

[jrsboo]

Dear Beverly,

I never had the headache, but that was just about the ONLY side effect I don't get.  I take ibuprofen for the bone pain, and aleve for muscle pain.  I think we are not supposed to take Tylenol. 

This will suck for a week or so, and then it will get better.  It gets better for everyone.  May not get back to your old self, but it will get better.  I promise.

There are lots written on this board about side effects, do some searches and you will feel better about what is coming, and what has worked for others.

Hugs,

Caroline

[Johnc]

Dear Beverly

I just started 3 weeks ago and the first day was the toughest with headaches for about 7 to 10 days. I took sprycel at 9 pm and had a headache from 4 to 8 am in the morning. Often they went away with no Ibuprohen

Good luck and relax as I was apprehensive early on which will subside too.

Take Care you will definitely get through this.

Johnc

[pammartin]

Sprycel can be fairly brutal in the first two weeks, but as everyone has mentioned it usually subsides within that time period.  I had about a week of serious symptoms, many you mentioned but then I began to feel somewhat better.  The headache and bone pain was hardest for me, after a year the symptoms do return from time to time but they are less severe and do not last for long period of times.  Our bodies are hit with a freight train when Sprycel first is taken, at least that is my opinion, and it takes a while to recover from the train wreck.  Best of luck!

[beverly]

Thank you. Day 5 and don't want to jinx it about not many side affects.. I am sure there will be ups and downs but after being through so much this year I am going to choose to be as happy and joyful and take care of myself for a change.

The loss of mother and my husband this year was awful and I know they would want me to be happy and strong.