Jump to content


Photo

anyone go to Erica Warlick?


  • Please log in to reply
4 replies to this topic

#1 ritan/

ritan/

    New Member

  • Members
  • Pip
  • 7 posts

Posted 31 October 2012 - 06:13 PM

i'm curious if anyone has any thoughts about Erica Warlick ?

i've decided after two of the last three bcr-abl tests came back "up" and at a bit over a year i am now at higher levels on the test than i was at 6 months (3.9% i think--don't have the tests right in front of me) and my onc is insisting that in spite of this i should just keep taking the meds i've been taking with no change at all, that i need to change oncologists. and i'm looking in MN since SD is has very small numbers of specialists, and NO leukemia specialists as far as i can tell.



#2 hannibellemo

hannibellemo

    Advanced Member

  • Members
  • PipPipPip
  • 728 posts
  • LocationNorth Central Iowa

Posted 01 November 2012 - 04:42 AM

I know it will be a bit of a drive for you since it's on the other side of MN, but Mayo is fantastic. I would not delay in finding a new doc, however, because it seems as though yours is in way over her head. Why does she not want to change meds since that appears to be indicated?

Good luck!

Pat


Pat

 

"You can't change the direction of the wind but you can adjust your sails."

DX 12/08; Gleevec 400mg; liver toxicity; Sprycel 100mg.; CCyR 4/10; MMR 8/10; Pleural Effusion 2/12; Sprycel 50mg. Maintaining MMR; 2/15 PCRU; 8/16 drifting in and out of undetected like a wave meeting the shore. Retired 12/23/2016! 18 months of PCRU, most recent at Mayo on 7/25/17 was negative at their new sensitivity reporting of 0.003.<p>


#3 ritan/

ritan/

    New Member

  • Members
  • Pip
  • 7 posts

Posted 02 November 2012 - 06:26 PM

i'm not honestly sure why my onc  is so nonhelpful. i just don't understand it.

who do you go to at mayo?

edit: everything is a long ways from me. mayo and minneapolis are about equidistant for me.

Message was edited by: Michelle Rajotte



#4 hannibellemo

hannibellemo

    Advanced Member

  • Members
  • PipPipPip
  • 728 posts
  • LocationNorth Central Iowa

Posted 02 November 2012 - 07:57 PM

Sorry, for some reason I assumed your onc was a "she".  I forgot to ask what you are taking now.

I go to Dr. Louis Letendre, http://www.mayoclini...o/10182560.html (sorry, the insert link is not working for me - please copy and paste in your browser).  I only see him once a year now and am mostly followed by my local onc but he tells me that Dr. Letendre reads all of his reports and they talk regularly so I'm pleased with the level of communication. Plus, every time I've called him (not many) we've connected almost immediately. I realize that he sees people far more ill than I so I don't bug him too much - it's enough to know I can if I need to.

Frank also started at Mayo, I don't know if he still goes or not, he is quite a bit further away than either of us. Mayo is about 1.5 - 2 hrs. from Mpls. and it's never a good drive in winter. My appt. is always in February!

The only concern I have with Dr. Warlick is that she specializes in transplant; otherwise you could certainly see what she has to say. (Although I would hope that most docs realize that transplant is the last option for anything).

I wouldn't wait too long because it generally isn't a good sign when the trend for PCR is heading up.

Let us know how it goes!

Pat


Pat

 

"You can't change the direction of the wind but you can adjust your sails."

DX 12/08; Gleevec 400mg; liver toxicity; Sprycel 100mg.; CCyR 4/10; MMR 8/10; Pleural Effusion 2/12; Sprycel 50mg. Maintaining MMR; 2/15 PCRU; 8/16 drifting in and out of undetected like a wave meeting the shore. Retired 12/23/2016! 18 months of PCRU, most recent at Mayo on 7/25/17 was negative at their new sensitivity reporting of 0.003.<p>


#5 NotJack?

NotJack?

    New Member

  • Members
  • Pip
  • 3 posts

Posted 05 November 2012 - 08:46 AM

Hi,

I go to Mark Litzow at Mayo.  He lists CML as one of his special interests.  He is thorough, very informative, always gives you as much time as you want (which means that he sometimes arrives late--but only because he is with another patient who has questions, or is confused, and he has a wonderful staff -- Darcy Z.)  I have absolutely no reservations in recommending him. I did an exhaustive search, and found him in the top 1% rating nationally by his peers.  He led Mayo's transplant team if my memory serves, but has never even mentioned the word to me as an option to consider.  I only say this because some on this board have found that oncs that are transplant affiliated tend to see everything through that filter.  It makes sense to be aware of this possibility, but I have seen no evidence of this in Mark.  Here is his bio:   http://www.mayoclini...o/10018301.html   Good luck, Jack


Jack





1 user(s) are reading this topic

0 members, 1 guests, 0 anonymous users