I am 39 with 3 little children and was diagnosed with cml a little over 3 weeks ago. My white blood count was high 478,000 so I was on Hydrea and allopurinol to get my counts down before my treatment started. When they took my bone marrow biopsy my blood was not clotting properly so it formed a lump the size of a softball in my back which was hitting the nerves in my back so I could barely move the week after I was diagnosed. Once that started getting better I developed a pretty good rash. My back pain and rash are both gone and am done with the hydrea and allopurinol and have started taking tsigna. I have been doing pretty well on it even though most days around 3:00 I get pretty exhausted and need to rest for a few hours.
I was just wondering how most people dealt with going back to work and people at work. Do they ease in to it or just go right back to their normal schedule.
My commute to get to work is about an hour and a half each way so my day is usually long.
I have a lot of anxiety about going back to work.
How long do people usually miss work when they are first diagnosed and how do they usually deal with their coworkers. My supervisors, the people who work for me and a few of my closer friends know but what about the rest of my coworkers. The high blood count made my spleen grow in to my stomach so I have had a tremendous weight loss. I lost about 50 pounds since April and since I was last in the office a few weeks I lost about 15 pounds. I now look pretty skinny and know it will be natural for every person I run across at work to comment on my weight. When I see any of my neighbors the first thing they ask me about is how I lost all the weight and can I tell them my diet.
My doctor and wife think it will be helpful for me to be more active so I have started taking the baby for a walk everyday and getting out of the house and they think i should go back to work. Anyway, like I said before physically and mentally I am concerned about going back to work and dealing with people and stressful situations at work which come up almost everyday. It would be helpful to me to know how long people missed work and how they dealt with their coworkers.