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Undetectable!!

Started by cleocans , Oct 10 2012 05:38 PM

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12 replies to this topic

#1 cleocans

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Posted 10 October 2012 - 05:38 PM

So I went to my Dr's appointment today. My blood work is good, all normal. That was good since I stopped taking my iron supplements because they were constipating me really badly. She said for me to take one every once in awhile though. Then she started talking about my last PCR test in July. She said that it was undetectable. I looked at her confused because I thought it had gone up a little, still stable. But nope the nurse read my results wrong, she told me my January results! So I am undetectable!! Hopefully todays test will show the same thing!! I'm not calling in for the results this time, I will go pick them up!

Since I don't really drink the family and I are going out for ice cream tonight to celebrate!!

Kim

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#2 GerryL

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Posted 10 October 2012 - 05:48 PM

Congratulations Kim.

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#3 janne

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Posted 10 October 2012 - 05:52 PM

Yahoo Kim ! And to think you could have been celebrating sooner than now !

Dx'd: 8/2008. Started Gleevec 400 mg 11/08.

Drug break 2011.

Started Tasigna 4/11 450 mg.

Reduction to 300 mg Tasigna 1/2012.

PCRU 9/2012.

12/2012 Detectable.

PCRU 4/2013 through 3/2015. (Reduced to 150 mg 7/2014)

12/2015 ? slightly detectable at probably less than 0.01% per Mayo Clinic.

4/2016 PCRU. Still at 150 mg Tasigna.

CESSATION: stopped treatment 7/20/2017.

9/6/2017: barely detectable at 0.01%.

12/11/2017: PCR at 0.09% (did not do the monthly PCR testing.)

12/18/2017: Inevitable call from Onc. Started back on Tasigna at 150 mg. (Considering Sprycel low dose.)

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#4 cam_kris

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Posted 10 October 2012 - 07:35 PM

Congratulations Kim!!!! if you dont mind, when were you dx with cml? what are you on, and for how long have you been on it? I am on Tasigna and have been on now for 6 months, bone marrow on monday to see where i am standing. What a wonderful feeling you must be going through now!!

How exciting!!

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#5 cleocans

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Posted 10 October 2012 - 07:52 PM

cam_kris, thank you! I was dx in July 2011. I am on 100mg Sprycel and have been on it for 15 months. So my 1 year PCR was the undetectable. Will find out in two weeks my newest PCR.

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#6 Guest_billronm_*

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Posted 10 October 2012 - 08:07 PM

Congratulations Kim, Eat lots of ice cream you deserve it. Billie

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#7 alexamay09

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Posted 11 October 2012 - 03:39 AM

Kim - I am thrilled for you. Congratulations and long may it last.

hugs

Alex

xxx

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#8 CallMeLucky

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Posted 11 October 2012 - 09:50 AM

I would say "Rocky Road" is the symbolic choice of flavor for a CML patient!

Congratulations on your results.....

Date - Lab - Scale - Drug - Dosage MG - PCR

2010/Jul - MSKCC - Non-IS - Gleevec - 400 - 1.2%

2010/Oct - MSKCC - Non-IS - Gleevec - 400 - 0.25%

2010/Dec - MSKCC - Non-IS - Gleevec - 400 - 0.367%

2011/Mar - MSKCC - Non-IS - Gleevec - 400 - 0.0081%

2011/Jun - MSKCC - Non-IS - Gleevec - 400 - 0%

2011/Sep - MSKCC - Non-IS - Gleevec - 400 - 0.00084%

2011/Dec - MSKCC - Non-IS - Gleevec - 400 - 0%

2012/Mar - MSKCC - Non-IS - Gleevec - 400 - 0.004%

2012/Jun - MSKCC - Non-IS - Gleevec - 400 - 0%

2012/Sep - MSKCC - Non-IS - Gleevec - 400 - 0%

2012/Dec - MSKCC - Non-IS - Sprycel - 100 - 0%

2013/Jan - Quest - IS - Sprycel - 50-60-70 - 0%

2013/Mar - Quest - IS - Sprycel - 60-70 - 0%

2013/Apr - CUMC - Non-IS - Sprycel - 50 - 0.036%

2013/May - CUMC - Non-IS - Sprycel - 50 - 0.046%

2013/Jun - Genoptix - IS - Sprycel - 50 - 0.0239%

2013/Jul - Genoptix - IS - Sprycel - 70 - 0.0192%

2013/Jul - Genoptix - IS - Sprycel - 70 - 0.0034%

2013/Oct - Genoptix - IS - Sprycel - 70 - 0.0054%

2014/Jan - Genoptix - IS - Sprycel - 70 - 0.0093%

2014/Mar - Genoptix - IS - Sprycel - 100 - 0.013%

2014/Apr - Genoptix - IS - Sprycel - 100 - 0.0048%

2014/Jul - Genoptix - IS - Sprycel - 100 - 0%

2014/Nov - Genoptix - IS - Sprycel - 100 - 0.047%

2014/Dec - Genoptix - IS - Sprycel - 100 - 0%

2015/Mar - Genoptix - IS - Sprycel - 100 - 0%

2015/Jun - Genoptix - IS - Sprycel - 100 - 0%

2015/Sep - Genoptix - IS - Sprycel - 100 - 0%

2015/Dec - Genoptix - IS - Sprycel - 100 - 0%

2016/Mar - Genoptix - IS - Sprycel - 100 - 0.0228%

2016/Jun - Genoptix - IS - Sprycel - 100 - 0%

2016/Sep - Genoptix - IS - Sprycel - 100 - 0%

2016/Dec - Genoptix - IS - Sprycel - 100 - 0%

2017/Mar - Genoptix - IS - Sprycel - 100 - 0%

2017/Jun - Genoptix - IS - Sprycel - 100 - 0%

2017/Sep - Genoptix - IS - Sprycel - 100 - 0%

2017/Dec - Genoptix - IS - Sprycel - 100 - 0%

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#9 Ray99

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Posted 11 October 2012 - 10:07 AM

Congratulation,

Great response.

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#10 Susan61

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Posted 11 October 2012 - 06:07 PM

Congratulations!!! Have some Ice Cream for me too. I do not drink either. Ice Cream sounds like a great way to celebrate. I loved Lucky's response with Rocky Road.