Hi guys let me first run by my story. I was diagnosed with CML 4/7/2011. My WBC was 600,000 and was put on Geleevec on and off but later got off because my platelets keeps getting low. Then a year later I was put on Tasigna. From 400mg every 12 hours to 200mg every 12 hours then eventually recently getting off it. The day after my 32nd birthday on 09/20 the doc told me I would need a bone marrow transplant. After reading the blogs and articles about it, I'm kinda worried. The onc sent a request to the City of Hope center.
I didn't have insurance and was covered by a county program but just a couple weeks ago I was approve for Medi-cal. I think the oncologists were just waiting for me to have some sort of coverage and when I told them I have Medi-cal, the main oncologist recommended BMT. My platelets are at 37 and my WBC is at 5.7. These counts seem to be stable even when I was taking 200 mg every 12 hours but my platelets keeps getting low. Low platelets were their main concern.
I plan getting a second opinion but I don't know where to start, I guess on here is a start. I just turned 32, I feel healthy, I'm at optimal BMI, I work out and have been lifting weights. I'm taking nitric oxide as supplement for muscle building, not sure if that was interacting with anything since my platelets kept getting low even without it. I have 5 siblings so matching my marrow may become easier.
Just needed some opinions or similar stories. My wife is at Navy boot camp right now and will graduate in November then go to her A-school. I will be in the process of getting military medical benefits. I don't want to worry her right now so I'm thinking of just waiting to get BMT or even just passing that up? I'm not sure right now. I asked the oncologist if switching to Sprycel will help but he didn't recommend that, Bone Marrow Transplant was my only option. I think I'll wait for my wife to finish boot camp and til I get military benefits to get a second opinion. What are your opinions? Thanks guys. I really appreciate all the info on here.