New Member
Posted 05 September 2012 - 10:12 AM
After Failure of GLIVEC and wating for 9 month for 2gen TKI tody i had finsh all paper work and take the final approval . I will recive 2 pack 50mmg of srycell next monday the ONC start with 100mmg /day for 3 month than i'll do PCR BCR_ABL
I hope S can make PCR ZERO
I'll Respect any input about the differance between S & G IN Sidefect ,interaction,effect
M abdo
New Member
Posted 05 September 2012 - 07:16 PM
Congrats! If I recall, you are in the Middle East (Egypt?), and you were worried about access to another drug. So does that mean you got it via government healthcare or via compassionate use from the drug company?
Forgive me if I garbled the facts. My memory is only so good, so I concede I might have mixed your story up with others. I'm getting old, what can I say? Other than I am happy to have TKIs so I CAN grow old!
Traci
New Member
Posted 05 September 2012 - 11:22 PM
Hi happycat
I see that you getting old but your memory is getting youth . I got S free of charge via agovermment healthcare and also there is a reduced price( 1000$) from the drug CO to Charities for how don't have Health insurance
M abdo
Advanced Member
Posted 06 September 2012 - 12:10 AM
That's great news! I take G so not sure about the side effects of Sprycel for you.
Diagnosed 9 June 2011, Glivec 400mg June 2011-July 2017, Tasigna 600mg July 2017-present (switched due to intolerable side effects, and desire for future cessation attempt).
Commenced monthly testing when MR4.0 lost during 2012.
2017: <0.01, <0.01, 0.005 (200mg Glivec, Adelaide) <0.01, 0.001 (new test sensitivity)
2016: <0.01, <0.01, PCRU, 0.002 (Adelaide)
2015: <0.01, <0.01, <0.01, 0.013
2014: PCRU, <0.01, <0.01, <0.01, <0.01
2013: 0.01, 0.014, 0.016, 0.026, 0.041, <0.01, <0.01
2012: <0.01, <0.01, 0.013, 0.032, 0.021
2011: 38.00, 12.00, 0.14
Member
Posted 06 September 2012 - 07:57 PM
Mabdou,
Glad you got your Sprycel. I will be anxiously awaiting to hear how your Journey goes.
Hopefully you will reach PCRU with few side effects and if proves to be to powerful, I'm sure your oncologist will adjust your dosage accordingly.
I have been on Gleevec for 7 years so I don't have first hand knowledge of Sprycel.
Warm Regards. PamSouth
PamSouth
New Member
Posted 06 September 2012 - 08:22 PM
Good news! I've been on Sprycel for 18 months and have had great results. The only serious side effect has been fluid build up in my lungs. I started at 100mg, now on 40. Good luck and I hope you do well.
Advanced Member
Posted 06 September 2012 - 10:46 PM
Hi: Glad to see you got the help you needed. So many of us are struggling to pay for our meds. I have been on Gleevec for 12 years, so I cannot help you with regard to side effects of Sprycel. We have a lot of people on Sprycel who are doing very well, so just ask questions if you should have any problem. Someone will be here to help.
Susan
New Member
Posted 07 September 2012 - 12:22 AM
Thank's Pam ,Susan ,teresebourgeois for warm regards and hopping all the best wishes for all
M abdo
New Member
Posted 08 September 2012 - 12:19 PM
Hi teresabourgeois
About the fluid build up in your lungs what was the treatmeant and what is the level of risk?
Appreciat yor input
M abdo
New Member
Posted 08 September 2012 - 08:12 PM
New Member
Posted 09 September 2012 - 09:46 AM
Why you don't switch to TASIGNA or SRYCEl still the right option ?
New Member
Posted 09 September 2012 - 07:48 PM
I had no response to G, had negative EKG with Tasigna and was put on 170mg day two years ago. I had limited side effects bone pain being the worst. After two years of not hitting PCR my Dr just increased
Me to 200 mg per day! I now take an Allegra that eliminates bone pain every day with my sprycel and I take 10mg of lasix two or three times a day to help with the water. I am a mother of four and work full time, I love sprycel!! Finally saw a 0 in my PCR results! Hoping for a few more next month! Best of luck to you!!!
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