Dylan diagnosed Jan 2010 with CML was expected to reach remission also known as 100 % MMR (major molecular response)
by January 2011. During Dylan's journey he had a lot of ankle pain and his walking was very different. We requested a MRI and
low and behold he was diagnosed with AVN in October of 2010 . We took Dylan to Texas Scottish Rite
Hospital in October had the 2 nd MRI and got the confirmed diagnosis. The doctor said we would do surgery
after the oncologists cleared him to do so. FAST FORWARD .. Dylan had AVN surgery on March 20, 2012.
He wore a spika cast until May 14 th and was non weight bearing the whole time. Dylan went for a follow up
appointment On Monday July 14 th and we were told he has all new bone growth and the surgery was doing well.
Dylan goes in on September 18 th to get all his hardware removed. Dylan is now able to toe touch. We are told
March of 2013 he should be able to resume all normal activities. Do any of you have experience with this ? We want a normal life for him walking and sports. He has been wheel chair bound going on 2 years. Did a diet change help continued bone growth? What are your thoughts on GLEE VEC and glucosamine ?
What are your thoughts on extra calcium and Glee VEC? Do you limit your child's carbonated drinks cokes ECT and such!
Do you limit candy and foods with a lot of sugar ? Any help is greatly appreciated. What are your thoughts on
Sugars and cancer .
I love LLS and I look forward to our days together sharing and helping each other.
Can pictures be loaded on this site I have before and after AVN pictures.